Intranodal MR lymphangiography is an imaging technique that allows for the central lymphatic vessels to be visualized. Lymph flow problems exist in many rare diseases, particularly in central conducting lymphatic anomaly and generalized lymphatic anomaly and its associated syndromes, such as Noonan.
On Thursday 27th May 2021 (from 10.00 – 16.45 h) & Friday 28th May 2021 (from 10.00 – 15.45 h) the kick-off meeting & 1st General Assembly of the European Rare Disease Research Coordination and Support Action ERICA will be held.
The initiative on “Medicines for children & rare diseases – updated [...]
ECTS 2021, the 48th annual meeting of the European Calcified Tissue Society, will be held as a virtual meeting. ECTS serves as a forum for researchers and clinicians working in the musculoskeletal field to discover and discuss the latest advances and controversies in research and in the daily care of patients.
The Research Mobility Fellowships aims to support PhD students, Postdocs and medical doctors in training to undertake scientific visits fostering specialist research training, on rare diseases, outside their countries of residence.
Up to 44 one-week visit packages will be available to healthcare professionals from ERN BOND member or Affiliated Partner centres over the coming two years.
ERN BOND coordination team and Italian rare bone diseases experts created the “COVID-19 Helpline for Rare Bone Diseases”, in collaboration with Italian Patient Associations. The helpline aimed at providing high-quality information and expertise on rare bone diseases remotely to patients and healthcare professionals.
BioMarin Pharmaceutical Inc. recently announced that the European Medicines Agency [...]
This International Summer School is a part of a series [...]
The Conference is a great opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community
ERN-BOND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are Funded by the European Commission. For more information about the ERNs and the EU health strategy, please visit ec.europa.eu/health/ern
Funded by the European Union
ERN BOND Specific Grant Agreement no. 101157116
Coordinating Center
Istituto Ortopedico Rizzoli
via G.C.Pupilli, 1 – 40136 Bologna – Italy
“Funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA. Neither the European Union nor the granting authority can be held responsible for them.”
Co-funded by the European Union
ERN BOND Specific Grant Agreement no. 101157116
Coordinating Center
Istituto Ortopedico Rizzoli
via G.C.Pupilli, 1 – 40136 Bologna – Italy
The contents of this website represents the views of the network and is its sole responsibility; and do not necessarily reflect the opinion of the European Union
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