ERN BOND knowledge spread in Events

The dissemination of activities and outcomes achieved by the ERNs is a cornerstone to ensure a wide impact among the rare disease community, including health professionals, patients and other stakeholders.
BOND dissemination actions mainly result in the organization and/or attendance as speakers of rare disease events or in the publication of lay articles for increasing awareness of ERNs in the rare disease community and the general public as well.

Page content under update!

List of events


ERN BOND: the importance of a Reference Network for RARE Diseases of the Musculoskeletal System
Maria Beatrice Michelis
Congress SIOT 106TH – Congress of the Italian Society of Orthopaedics and Traumatology – Roma, Italy 9th – 11th November 2023.


ERN BOND: the future of assistance in European integration
Luca Sangiorgi
Congress on “Hot topics: paediatric bone diseases” organized by the Rare Bone Metabolism Center – AOU Policlinico Umberto 1 – Roma, Italy on September 15th – 16th, 2023.


ERN and national health system:how to integrate them?
Luca Sangiorgi
Educational course Rare and complex diseases in rheumatology, by Italian Society of Rheumatology.
02/03/2023 in person



The purpose of the Slovenian ERN HUB (EN)

European Reference Networks and the Slovenian Healthcare System
22/07/2021 Online

ERN BOND updates (EN)
Lars Sävendah
ESPE RDAG Web Conference
05/11/2021 Online

Addressing delays in the diagnosis and referral of achondroplasia (EN)

European achondroplasia forum
11/05/2021 Online

Lay publications and Press release





Go to Top