Dissemination2022-10-25T16:12:15+02:00

ERN BOND knowledge spread in Events

The dissemination of activities and outcomes achieved by the ERNs is a cornerstone to ensure a wide impact among the rare disease community, including health professionals, patients and other stakeholders.
BOND dissemination actions mainly result in the organization and/or attendance as speakers of rare disease events or in the publication of lay articles for increasing awareness of ERNs in the rare disease community and the general public as well.

Page content under update!
List of events
List of Lay publications and Press release

List of events

2022

2021

The purpose of the Slovenian ERN HUB (EN)

European Reference Networks and the Slovenian Healthcare System
22/07/2021 Online

ERN BOND updates (EN)
Lars Sävendah
ESPE RDAG Web Conference
05/11/2021 Online

Addressing delays in the diagnosis and referral of achondroplasia (EN)

European achondroplasia forum
11/05/2021 Online

Lay publications and Press release

2022

2021

2020

2017

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