admin, Author at ERN BOND

Rare disease day 2021

Rare disease day 2021 Italy Webinar series about COVID-19 [...]

Rare disease day 2021admin2024-03-06T17:39:08+01:00

Rare disease day 2018 Europe Presentation of the ERN [...]

Rare disease day 2018admin2024-03-06T17:38:27+01:00

🗓 From 20th to 22nd September 2023 ⏰ 09:00 - [...]

EJP RD Variant Prioritization and Enrichment for Rare Diseases Workshopadmin2023-09-07T11:13:07+02:00

Don't miss your chance to nominate your star of the [...]

EURORDIS – European Rare Diseases Organisation Black Pearl Awardsadmin2023-09-07T11:13:02+02:00

HOT TOPICS: Pediatric Bone Diseases. New diagnostic and therapeutic frontiers. [...]

HOT TOPICS – Pediatric Bone Diseasesadmin2023-07-20T10:25:19+02:00

Survey now live! Take the new #RareBarometer survey and share [...]

Take the new #RareBarometer survey!admin2023-07-20T10:21:58+02:00

🔹The conference addressed issues around pain in OI, and also [...]

Liana, Tenna, Claudia and Rebecca attended and contributed under the OIFE conference “Balancing life with OI”.admin2023-06-22T10:15:52+02:00

Workshop "Patient priorities in ERN BOND beyond Quality of Life" [...]

Workshop “Patient priorities in ERN BOND beyond Quality of Life”admin2023-05-03T17:47:13+02:00

4th - 5th May 2023 Bologna at Centro di Ricerca [...]

ERN BOND plenary hybrid meetingadmin2024-08-01T14:05:30+02:00

⏰ 29th and 30th of April 📍 Setúbal, Lisbon A [...]

The 2nd ANDO Congress: “Discovering Knowledge and Experiences”admin2023-04-20T11:23:53+02:00