Clinical Trials & Research Studies

List of clinical trials & research studies under update

ERN BOND by liaising with relevant stakeholders, collects and disseminate to BOND members the information and activities with the aim to facilitate the good clinical trial conduct for Rare Bone Disorders.

ERN BOND supports also the development of investigator led studies in rare bone disorders, covering both clinical trials of investigational medical products and research studies not involving drugs.

In the past, the thematic group on Clinical Trials supported the development and conduction of a studies involving BOND expert centres to:
– validate the existing paediatric Osteogenesis Imerfecta Quality of Life tools and to,
– ascertain child and parent priorities for research in Osteogenesis Imperfecta.

List of clinical trials & research studies involving BOND expert centres