ERN BOND Rare Bone Diseases Diagnosis Questionnaire
We want to inform you about the survey developed by WG1 Diagnostic Challenges of ERN BOND to obtain comprehensive characterization of rare bone disease diagnosis across Europe. It is available [...]
ERN Webinar: Tuesday September 28th 2021
Save the date for the next webinar organised by ERN BOND: Tuesday September 28th 2021 at 17:00 CEST "Talking about the type 2 collagen disorders"
ERN Webinar: Tuesday September 7th 2021
Save the date for the next webinar organised by ERN BOND: Tuesday September 7th 2021 at 16:30 CEST "FD/MAS a joined venture"
EURORDIS annual Black Pearl Awards
Don't miss your chance to nominate your star of the rare disease community, or enter yourself, for one of the EURORDIS Black Pearl Awards 2022. The 12 award categories recognise the [...]
Save the date for the next webinar organised by ERN BOND
Save the date for the next webinar organised by ERN BOND: Monday June 28th at 17:00 – 18:00 CEST "EuRR-Bone: what and how?"
New webinar organised by ERN BOND
ERN BOND organises a series of webinars: the first one will be on Tuesday June 22nd at 11:00 – 12:00 CEST. Gender issues in COVID-19 pandemia Speaker: Prof. Maria Luisa [...]
Save the date for the next webinars organised by ERN BOND
Save the date for the next webinars organised by ERN BOND. Updates and participation links will be published on the ERN BOND website.
Advances in diagnostic and therapeutic methods for lymph flow abnormalities
Intranodal MR lymphangiography is an imaging technique that allows for the central lymphatic vessels to be visualized. Lymph flow problems exist in many rare diseases, particularly in central conducting lymphatic anomaly and generalized lymphatic anomaly and its associated syndromes, such as Noonan.