Providing high-quality care remotely to patients with rare bone diseases during COVID-19 pandemic

ERN BOND coordination team and Italian rare bone diseases experts created the “COVID-19 Helpline for Rare Bone Diseases”, in collaboration with Italian Patient Associations. The helpline aimed at providing high-quality information and expertise on rare bone diseases remotely to patients and healthcare professionals.

Welcome EuRR-Bone!

The European Commission accepted our proposal on the call for projects aiming to support the development and creation of registries for rare diseases in Europe. We can now start to create EuRR-Bone – European [...]

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