All 24 ERNs united to help Ukrainian people with rare diseases
All 24 European Reference Networks (ERNs) launch a dedicated website and social media campaign to collect information to help health professionals to find support for Ukrainian patients with rare diseases: [...]
ERN BOND Webinar: Human Body Movement & Scan Analyses
ERN BOND webinars are aimed at prompting education and training on rare bone diseases and addressed to healthcare professionals, patients and patients groups in order to increase knowledge on rare [...]
ERN BOND became Associate Partner of ECRD 2022
The ECRD is the largest multi-stakeholder gathering in Europe for the rare disease community. The biennial Conference is an opportunity to network and exchange knowledge with patient advocates, policy makers, [...]
Rare Disease Day activities
Rebecca Tvedt Skarberg, ERN BOND ePAG, is chair of Rare Disease Day conference in Norway. This years event will be held digital (in Norwegian). The Norwegian Minister of Health will [...]
Una presa in carico più equa ed olistica per la persona con malattia rara
#RAREDISEASEDAY - 25.02.2022 In occasione della Giornata delle Malattie Rare, ERN BOND, la rete di riferimento europea... Pubblicato da ERN BOND - European Reference Network on Rare Bone Diseases su Venerdì [...]
European Reference Network on Rare Bone Diseases 5th Anniversary online conference
The ERN BOND conference celebrating the 5-year network anniversary will be online from 8th to 9th February 2022. Please register to reserve your seat! This year EuRR-Bone annual meeting and ERN BOND [...]
Recording of the Covid-19 and vaccines webinar now available with English subtitles
Speakers: Prof. Ivan Gentile, Dott. Luca Sangiorgi view replay
Recording of the Covid-19 and psychological impact webinar now available with English subtitles
Speakers: Dr. Marianna Matera, Dr. Manila Boarini view replay