Governance

ERN BOND has a defined organisational structure that identifies the bodies responsible for specific aspects of network management, and outlines the decision-making procedures.
The Coordinator is the supervisor of the overall progress of the network activities and acts also as intermediary between the European Commission and other ERNs as well. The Coordinator chairs and facilitates the meetings of Steering and Management Committees. The Coordinator is supported by the Coordination Team including project managers and the CPMS Helpdesk manager.

• The Steering Committee, the decision-making body, is composed by the Work Package leaders and 2 ePAG representatives. Steering Committee members take responsibility for creating an inclusive and democratic style of project governance during the overall implementation of the activities.
• The Management Committee, the operational body, comprises the HCP representatives and all patient representatives of ERN BOND. This board is responsible for the operational structure of the ERN and for the completion of its activities and tasks in the proposed time. Each representative has the right to vote on decisions to be taken.
• The Scientific Advisory Board, the consultative body, is responsible for giving scientific advice, providing foresight and helping with ongoing and coming priorities. Its members are nominated, through voting, by the Management and Steering Committees.

All the ERN BOND activities transversally address RBDs and are carried out within 8 Work Packages (WPs), focusing on the following thematic areas to respond to the EC requirements/indications: network coordination, dissemination and evaluation, guidelines, disease registry, diagnosis, research, and education and training. Each WP is composed of its  leaders in charge to manage the respective scientific activities. Patient representatives are present in each WP bringing their perspective in each activity and action.

ERN BOND Governance Structure