All 24 European Reference Networks launch a dedicated website and social media campaign to collect information to help health professionals to find support for Ukrainian patients with rare diseases: diagnosis, treatment, advice.
The centres of expertise, particularly those located in the countries currently receiving large numbers of refugees (Poland, Slovakia, Hungary, Romania) are ready to help Ukranian patients with rare/very rare diseases, for specific diagnostic procedures and treatment.
#ERNcare4Ua
Visit the websiteSurvey for ERNs to report Ukrainian refugees care
If you are from an ERN BOND HCP and have treated any rare disease patient refugees from Ukraine,
Funded by the European Union
“Funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA. Neither the European Union nor the granting authority can be held responsible for them.”
