EuRREB
EuRREB – European Registries for Rare Endocrine and Bone conditions supports patients, healthcare professionals, and researchers in addressing the challenges of rare endocrine and bone/mineral diseases.
EuRREB is the merging of EuRRECa – European Registries for Rare Endocrine Conditions, and EuRR-Bone – European Registries for Rare Bone and Mineral Conditions. We serve and work closely together with the European Reference Networks (ERNs): Endo-ERN and ERN BOND.
The project has been officially launched in April 2020 and it is organised in 5 Work Packages and 5 Vertical Themes: one focuses on Integration of EuRR-Bone and the others on specific diseases: Fibrous Dysplasia/McCune Albright Syndrome, X-linked Hypophosphatemic Rickets, Osteogenesis Imperfecta and Achondroplasia.
The EuRR-Bone project is funded by the European Union’s Health Programme.
Every second Friday (at 2pm) and fourth Wednesday (at 4pm) of every month EuRREB organises an online Drop-In (support) session via Zoom.
Funded by the European Union
“Funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA. Neither the European Union nor the granting authority can be held responsible for them.”
