Webinars2023-02-22T10:52:53+01:00

Webinars

ERN BOND webinars are aimed at prompting education and training on rare bone diseases and addressed to healthcare professionals, patients and patients groups in order to increase knowledge on rare bone diseases.

These webinars are free to join, however pre-registration is required.

Upcoming webinars

c4c Trials and Education/Teaching

OrganiserERICA in collaboration with conect4children, EJP RD and ERN BOND

Date and time: April 11, 2024 at 13:00 – 14:00 CEST

Chair:  Mark Turner

Speakers:  Becca Leary, Chloe Bickerstaff and Francesca Rocchi

Aim: This webinar introduces two of the services: support for clinical trials and education & training.

Register

 

 

Past webinars

REMEDI4ALL / drug repurposing and clinical trial readiness

Monday October 2nd 2023 from 13:00 to 14:00 CET

Speaker: Anton Ussi (EATRIS ERIC – European Infrastructure for Translational Medicine)

Organised by ERICA in collaboration with EJP RD and ERN BOND

 

 

Webinar Series Rare Bone Diseases: Ollier Disease

Chairs: Dr Luca Sangiorgi, Istituto Ortopedico Rizzoli, Bologna, Italy & Dr Thomas Funck-Brentano, Université de Paris, Paris, France

Speaker: Prof Valérie Cormier-Daire, French Institute of Health and Medical Research, France

October 3rd 2023, from 16:00 to 17:00 CET

Organisers: European Calcified Tissue Society and ERN BOND

 

Framework for Patient Engagement in Clinical Trials

Wednesday May 24th 2023 from 15:00 to 16:00 CEST

Speakers: Virginie Hivert and María Cavaller Bellaubi, EURORDIS- Rare Diseases Europe

Organised by ERICA in collaboration with EJP RD and ERN BOND

Introduction on Patient-Reported Outcomes and considerations before including them in a clinical trial. Study case from the ERN-EuroBloodNet

Wednesday May 10th 2023 from 12:30 to 13:30 CEST

Speakers: Céline Desvignes-Gleizes, Mapi Research Trust, Andreas Glenthøj, hematologist clinician, Dore Peereboom, Stichting Zeldzame Bloedziekten

Organised by ERICA in collaboration with EJP RD and ERN BOND

Definition of orphan drug by the EMA

Tuesday March 28th 2023 from 12:30 to 13:30 CET

Speaker: Armando Magrelli, Istituto Superiore di Sanità (ISS) Roma, Italy

Organised by ERICA in collaboration with EJP RD and ERN BOND

 

Melorheostosis – Webinar series in rare bone disease

1st part:  Tuesday February 7th 2023 from 16:00 to 17:00 CET

2nd part: Tuesday March 14th 2023 from 16:00 to 17:00 CET

Hosts: Natasha Appelman-Dijkstre, Natalie Butterfield

Speaker: Geert Mortier

Co-organizing with ECTS

 

ERN-BOND, the last five years and the future.

ERN BOND webinars are aimed at prompting education and training on rare bone diseases and addressed to healthcare professionals, patients and patients groups in order to increase knowledge on rare bone diseases.

Speaker: Luca Sangiorgi

view replay

ERN BOND Webinar: Human Body Movement & Scan Analyses

ERN BOND webinars are aimed at prompting education and training on rare bone diseases and addressed to healthcare professionals, patients and patients groups in order to increase knowledge on rare bone diseases.

view replay

FD/MAS a joined venture

Tuesday September 7th 2021
Speakers: Prof. Michiel van de Sande and Dr. N. M. Appelman-Dijkstra

REPLAY NOT AVAILABLE

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