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ERN BOND members yearly contribute to the Rare Disease Day campaign for raising awareness and generating change for people worldwide living with a rare disease, their families and carers.

Rare disease day 2022
Italy
Conference Una presa in carico più equa ed olistica per la persona con malattia rara, Le reti in sanità: le forme dell’integrazione (Italian)
25 February 2022, Bologna (Italy) – Luca Sangiorgi
Norway
Rare Disease Day conference (Norwegian)
28 February 2022 – Rebecca Tvedt Skarberg

Rare disease day 2021
Series of webinars about COVID-19 and rare bone diseases in collaboration.with As.It.O.I. (Osteogenesis Imperfecta Italian Association), A.C.A.R. (Italian Association on Multiple osteochondromas, Maffucci syndrome and Ollier disease) and UNIAMO FIMR (Italian Federation on rare diseases). The events were endorsed by FondazioneTelethon  (Italian non-profit organisation fostering rare disease research), BBMRI.it (the Italian node of the European research infrastructure for biobanking) and Istituto Superiore di Sanità, (the Italian health institute). Pdf link
Covid-19 and vaccines (Italian with English subtitles)
Speakers: Prof. Ivan Gentile, Dott. Luca Sangiorgi

Covid-19 and psychological impact (Italian with English subtitles)
Speakers: Dr. Marianna Matera, Dr. Manila Boarini

Rare Bone Diseases during COVID-19 pandemic (Italian)