Survey on the Transition from Paediatric to Adult Care

We invite patients across Europe living with Multiple Osteochondromas or Enchondromatoses to take part in an anonymous survey about their experience transitioning from paediatric to adult healthcare (typically between 13 and 25 years of age).

This survey is conducted under the coordination of ERN BOND (European Reference Network on Rare Bone Diseases), which aims to improve care and outcomes for people living with rare bone diseases across Europe.

Why participate?

Share your transition experience to help improve care pathways for future patients and build a comprehensive Patient Journey that will benefit the Multiple Osteochondromas and Enchondromatoses communities.

Ensure that patient voices help shape future care strategies across Europe.

Event summary

Survey Survey on multiple osteochondromas and enchondromatoses during the transition from paediatric care to adult care
Who can participate? Patient who are 18 years old or older and have already experienced the transition from paediatric to adult care, or patients who are currently going through it.
Survey link survey
Time The survey takes only 5–10 minutes to complete, and your input is invaluable.