World Orphan Drug Congress Europe 2026, Amsterdam
We are pleased to announce that ERN BOND is a [...]
7 October 2026: Transition: Beyond Transfer – A Holistic Approach to Care, Independence and Participation
Webinar Webinar Transition: Beyond Transfer - A Holistic Approach to [...]
10 September 2026: Hypophosphatemia: Clinical consequences and diagnostic approach
Webinar Webinar Hypophosphatemia: Clinical consequences and diagnostic approach Date and [...]
Clinical perspectives on Achondroplasia: Management from birth to adolescence
Webinar Webinar Clinical perspectives on Achondroplasia: Management from birth to [...]
ERN BOND endorsed event: EPOS BAT Advanced course: Rare Bone Diseases, Bologna, 17-18 September
We are pleased to announce the upcoming EPOS BAT [...]
12th Plenary meeting for representatives of ERN BOND in Paris
We are pleased to announce that the next ERN [...]
Patient-centered perspective – insights from an epag workshop
Patient-centered perspective insights from an epag workshop ECRD 2026, Praga [...]
Rare Bone Diseases webinar series, featuring an ECTS paper on Osteopetrosis.
Webinar Webinar Rare Bone Diseases webinar series, featuring an ECTS [...]
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“Funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA. Neither the European Union nor the granting authority can be held responsible for them.”
