The general assembly of RealiseD, an IHI funded project, took place in Barcelona, on the 28th and 29th January.
ERN BOND was represented by Luca Sangiorgi and Inês Alves, ERN BOND ePAG. Inês gave the keynote speech, focused on the fundamental piece that patient involvement is to advance clinical trial design for rare diseases.
RealiseD is an ambitious European project that brings together around 40 partners from academia, regulatory bodies, clinical research institutes, hospitals, patient organizations, the pharmaceutical industry, and European Research Infrastructures, as ERN BOND. Its main objective is to establish new “gold standards” for clinical trials in rare and ultra-rare diseases, promoting more effective, inclusive, and patient-centered methodologies.
Event summary
| Event | RealiseD General Assembly Meeting |
| Date | 27-28 January 2026 |
| Location | Barcelona, Spain |
Funded by the European Union
“Funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA. Neither the European Union nor the granting authority can be held responsible for them.”
