XIV ACAR conference: ERN BOND area of expertise thematic session
XIV ACAR conference: ERN BOND area of expertise thematic session [...]
About Giusi
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The diagnosis of hypophosphatasia in children as a multidisciplinary effort: an expert opinion
The diagnosis of hypophosphatasia in children as a multidisciplinary effort: [...]
Vosoritide Therapy in Children with Achondroplasia: Early Experience and Practical Considerations for Clinical Practice
Vosoritide Therapy in Children with Achondroplasia: Early Experience and Practical [...]
Life span care for patients with skeletal dysplasia: A roadmap.
Life span care for patients with skeletal dysplasia: A roadmap [...]
XLH Matters 2022: Insights and recommendations to improve outcomes for people living with X-linked hypophosphataemia (XLH)
XLH Matters 2022: Insights and recommendations to improve outcomes for [...]
Global guidance for the recognition, diagnosis, and management of tumor-induced osteomalacia
Global guidance for the recognition, diagnosis, and management of tumor-induced [...]
Real-world evidence in achondroplasia: considerations for a standardized data set
Real-world evidence in achondroplasia: considerations for a standardized data set [...]
Osteogenesis imperfecta
Osteogenesis imperfecta (SV) Swedish National Board of Health and Wellfare [...]
Cleidocranial dysplasia
Cleidocranial dysplasia (SV) National Board of Health and Wellfare (Socialstyrelsen), [...]
TRPV4–related skeletal dysplasias (SV)
TRPV4–related skeletal dysplasias (SV) National Board of Health and Wellfare [...]
Funded by the European Union
“Funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA. Neither the European Union nor the granting authority can be held responsible for them.”
