EURORDIS calls for action:
EURORDIS, a leading European rare disease organisation, is calling for a continued focus on rare diseases following the upcoming European Action Plan, and has drafted an open letter to the European Commission outlining steps to ensure the Plan translates into meaningful improvements for patients.
The letter highlights the need for a comprehensive strategy that bridges different policy areas and streamlines existing efforts. Specific targets with clear metrics are seen as essential to track progress.
EURORDIS encourages individuals and institutions to sign the letter to show their support for continued action on rare diseases.
SIGN it Here: Open letter