Conference Asitoi 2024: “PASSWORD, unlock your quality of life”
Bologna, Italy - June 14 - 16, 2024 - The 40th [...]
EURORDIS Open Letter to the European Commission – read and sign it
EURORDIS calls for action: EURORDIS, a leading European rare disease [...]
ERN BOND ePAG Hybrid Meeting
We are pleased to announce the upcoming hybrid ERN BOND [...]
Characterization of three adults and an adolescent with Osteogenesis Imperfecta type VI and a novel founder SERPINF1 variant
Characterization of three adults and an adolescent with Osteogenesis Imperfecta [...]
Cost-effectiveness of bringing a nurse into an Italian genetic day clinic: a before and after study
Cost-effectiveness of bringing a nurse into an Italian genetic day [...]
Project SATURN– a real-world evidence data collaboration with existing European datasets in Osteogenesis Imperfecta to support future therapies
Project SATURN– a real-world evidence data collaboration with existing European [...]
Tubular phosphate transport: a comparison between different methods of urine sample collection in FGF23-dependent hypophosphatemic syndromes
Tubular phosphate transport: a comparison between different methods of urine [...]
3rd ISCBH-ERN BOND international Achondroplasia workshop
3rd ISCBH/ERN BOND International Achondroplasia Workshop “Long bone pathology in [...]
2nd REMEDi4ALL Multi-Stakeholder Meeting (MSM) “Patient Centricity on Osteogenesis Imperfecta (OI) Research”
REMEDi4ALL invites all stakeholders in the osteogenesis imperfect (OI) research [...]
c4c expert advice, patient and public involvement, data standards
Webinar Webinar c4c expert advice, patient and public involvement, data [...]
Funded by the European Union
“Funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA. Neither the European Union nor the granting authority can be held responsible for them.”
