ERN BOND WP7 survey on “Clinical decision-making in rare bone diseases”
On behalf of the WP7 leaders, we invite all healthcare [...]
Survey on Global Perspectives on XLH: access and Challenges in Adult Care with a Focus on Transition and Patients Over 65
At the Fondazione Cà Granda IRCCS Ospedale Maggiore Policlinico in [...]
Challenges in Estimating Renal Function in X-linked Hypophosphatemia because of formula Overestimation and FGF23 Effects
Challenges in Estimating Renal Function in X-linked Hypophosphatemia because of [...]
Predictors of response to burosumab in adults with X-linked hypophosphatemia: real-world data from an Italian cohort
Predictors of response to burosumab in adults with X-linked hypophosphatemia: [...]
ERN BOND Preganancy Survey Hybrid meeting
We're pleased to announce the ERN BOND Pregnancy Survey [...]
EuRREB Symposium 2025
Registries Symposium The Registries Symposium will take place on [...]
SAVE THE DATE! European Congress on Rare Diseases and Orphan Drugs
C2p Forum is excited to announce the European Congress on [...]
OIFE Investigator meeting 2025
The umbrella association Osteogenesis Imperfecta Federation Europe (OIFE), together [...]
OIFE WEBINAR: Clinical Trial Update 2025
The umbrella organization Osteogenesis Imperfecta Federation Europe (OIFE) invite you [...]
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