JARDIN General Assembly 2025
The JARDIN General Assembly 2025 will take place in Vilnius [...]
Call for students (PhD or medical) exchange for putting in data into the registries.
If you want to contribute to the core registry [...]
Developing a standard dataset in the European registries for rare endocrine and bone conditions—a Melorheostosis dataset
Developing a standard dataset in the European registries for rare [...]
International Congress on Skeletal Dysplasias: Embracing the Future
From 10–12 October 2025, the 8th International Congress on Achondroplasia [...]
Reti ERN e Joint Action JARDIN:
Reti ERN e Joint Action JARDIN Nuovi orizzonti: il viaggio [...]
Nuovi orizzonti: il viaggio per ridurre l’Odeissea diagnostica è iniziato
Event summary Event theme Nuovi orizzonti: il viaggio per ridurre [...]
ERN BOND endorsed event: CAKS annual meeting 2025
Center for Rare and Complex Diseases (CAKS) is a brickless [...]
Cardiac manifestations in children with osteogenesis imperfecta: A single-center observational [...]
Funded by the European Union
“Funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA. Neither the European Union nor the granting authority can be held responsible for them.”
