Clinical decision-making in Rare Bone Diseases: A survey among EPOS and ERN-BOND members
Clinical decision-making in Rare Bone Diseases: A survey among EPOS [...]
Open Day on Rare Skeletal Diseases at the Rizzoli Orthopaedic Institute – October 31, 2025
Open Day on Rare Skeletal Diseases at the Rizzoli [...]
Workshop on international guidelines on XLH on Wednesday 29 October
REGISTER NOW for the free, virtual workshop on The new [...]
Master Class in Skeletal Dysplasias
We’re excited to announce the First Master Class in Skeletal [...]
𝐍𝐞𝐰 𝐏𝐢𝐥𝐨𝐭 𝐄𝐐𝐀 𝐟𝐨𝐫 𝐒𝐤𝐞𝐥𝐞𝐭𝐚𝐥 𝐃𝐲𝐬𝐩𝐥𝐚𝐬𝐢𝐚.
𝐍𝐞𝐰 𝐏𝐢𝐥𝐨𝐭 𝐄𝐐𝐀 𝐟𝐨𝐫 𝐒𝐤𝐞𝐥𝐞𝐭𝐚𝐥 𝐃𝐲𝐬𝐩𝐥𝐚𝐬𝐢𝐚. We are pleased [...]
Involvement of patient organisations in research activities: actions taken and lessons learned in a clinical research study for osteogenesis imperfecta
Involvement of patient organisations in research activities: actions taken and [...]
International Conference on Clinical Research Networks for Rare Diseases
Join the 2nd International Conference on Clinical Research Networks (CRNs) [...]
Funded by the European Union
“Funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA. Neither the European Union nor the granting authority can be held responsible for them.”
