ERNS (EUROPEAN REFERENCE NETWORKS) AND THEIR INVOLVEMENT IN NATIONAL RARE DISEASE NETWORKS
ERNs (european reference networks) and their involvement in national rare [...]
About Giusi
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Working towards a multidisciplinary and shared approach of rare disease patients transition from paediatric to adult care management
Working towards a multidisciplinary and shared approach of rare disease [...]
Introduction to ERN BOND
Introduction to ERN BOND (IT) South central macroregional conference, Salerno [...]
Introduction to ERN BOND (IT)
Introduction to ERN BOND (IT) North central macroregional conference, Modena [...]
Young XLH Patients-Reported Experience with a Supportive Care Program
Young XLH Patients-Reported Experience with a Supportive Care Program Rothenbuhler, [...]
Nosology of genetic skeletal disorders: 2023 revision
Nosology of genetic skeletal disorders: 2023 revision Unger, Sheila et [...]
Current projects for the costruction of the European Health Union
Current projects for the costruction of the European Health Union [...]
ERN-BOND: Diagnostic pathways
ERN-BOND: Diagnostic pathways (EN) OI2022 - 14th International Conference on [...]
Malattie rare scheletriche, al Rizzoli un percorso per velocizzare la diagnosi
Malattie rare scheletriche, al Rizzoli un percorso per velocizzare la [...]
RARE DAYS 2022: Bone Day
RARE DAYS 2022: Bone Day 07/06/2022, Online
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