Potential digital project for diagnosis of Patients living with rare disease
ERN BOND overview Data science and digital innovation meeting (Alexion [...]
SATURN: assessing the feasibility of utilising existing registries for real-world evidence data collection to meet patients, regulatory, health technology assessment and payer requirements
SATURN: assessing the feasibility of utilising existing registries for real-world [...]
National workshops on Cross-Border Healthcare, Patients’ Rights and Rare Diseases
In the context of enhancing the implementation of Directive [...]
2nd ERN ReCONNET International Congress on rare and low-prevalence connective tissue diseases
The Congress Committee and the ERN ReCONNET is glad to [...]
WHA Resolution on Rare Diseases Webinar
This year, Rare Diseases International has begun advocating for the [...]
ERN BOND endrosed event: 2° ANEOP Future course and 17° ANEOP CONGRESS
ANEOP (Non-Profit Association of Osteoporosis Experts) is once again proposing [...]
Variants in both the N- or C-terminal domains of IHH lead to defective secretion causing short stature and skeletal defects
Variants in both the N- or C-terminal domains of IHH [...]
1st ANDO Madeira Regional Meeting
The 1st ANDO Regional Meeting will be held on 2 [...]
Special Issue on rare skeletal diseases in periodic Italian magazine “Tabloid di Ortopedia”.
BOND members from Italian HCPs are invited in contributing to [...]
The Role of the European Reference Network for Rare Bone Diseases (ERN BOND) and European Registries for Rare Bone and Mineral Conditions (EuRR-Bone) in the Governance of the Management of Rare Bone and Mineral Diseases
The Role of the European Reference Network for Rare Bone [...]
Funded by the European Union
“Funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA. Neither the European Union nor the granting authority can be held responsible for them.”
