Cost-effectiveness of bringing a nurse into an Italian genetic day clinic: a before and after study
Cost-effectiveness of bringing a nurse into an Italian genetic day [...]
Project SATURN– a real-world evidence data collaboration with existing European datasets in Osteogenesis Imperfecta to support future therapies
Project SATURN– a real-world evidence data collaboration with existing European [...]
Tubular phosphate transport: a comparison between different methods of urine sample collection in FGF23-dependent hypophosphatemic syndromes
Tubular phosphate transport: a comparison between different methods of urine [...]
3rd ISCH-ERN BOND international Achondroplasia workshop
3rd ISCBH/ERN BOND International Achondroplasia Workshop “Long bone pathology in [...]
2nd REMEDi4ALL Multi-Stakeholder Meeting (MSM) “Patient Centricity on Osteogenesis Imperfecta (OI) Research”
REMEDi4ALL invites all stakeholders in the osteogenesis imperfect (OI) research [...]
c4c expert advice, patient and public involvement, data standards
Webinar Webinar c4c expert advice, patient and public involvement, data [...]
XIV ACAR conference: ERN BOND area of expertise thematic session
XIV ACAR conference: ERN BOND area of expertise thematic session [...]
The diagnosis of hypophosphatasia in children as a multidisciplinary effort: an expert opinion
The diagnosis of hypophosphatasia in children as a multidisciplinary effort: [...]
Vosoritide Therapy in Children with Achondroplasia: Early Experience and Practical Considerations for Clinical Practice
Vosoritide Therapy in Children with Achondroplasia: Early Experience and Practical [...]
Life span care for patients with skeletal dysplasia: A roadmap.
Life span care for patients with skeletal dysplasia: A roadmap [...]
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