World Orphan Drug Congress Europe, 27-29 October in Amsterdam
ERN BOND is an official partner of The World Orphan [...]
Transition Care for Young Persons with Rare Bone Mineral Conditions: A Consensus Recommendation from the ECTS Rare Bone Disease Action Group
Transition Care for Young Persons with Rare Bone Mineral Conditions: [...]
Evaluation of the benefits of adapted physical activity in children and adolescents with osteogenesis imperfecta: the MOVE-OI trial
Evaluation of the benefits of adapted physical activity in children [...]
The importance of European Patient Advocacy Groups (ePAGs) for the European Reference Network ERN BOND
The importance of European Patient Advocacy Groups (ePAGs) for the [...]
Further Evidence of Early-Onset Osteoporosis and Bone Fractures as a New FGFR2-Related Phenotype
Further Evidence of Early-Onset Osteoporosis and Bone Fractures as a [...]
Presentation of ERN (European Reference Network)
Presentation of ERN (European Reference Network) EPOS 2025 – 43rd [...]
Dublin: Rare Disease Research Conference 2025
A crucial event for the rare disease community is set [...]
Funded by the European Union
“Funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA. Neither the European Union nor the granting authority can be held responsible for them.”
