ISDS: ERN BOND workshop at the 16th ISDS
ISDS:ERN BOND workshop coorganised by ERN BOND Madrid (SP), 18/09/2024
ULS Santa Maria Bone Dysplasia Team and ERN BOND: Bone Dysplasia in the European, National, Regional and Institutional Context
ULS Santa Maria Bone Dysplasia Team and ERN BOND: Bone [...]
3rd ISCBH/ERN BOND International Achondroplasia Workshop “Long bone pathology in children with Achondroplasia”
3rd ISCBH/ERN BOND International Achondroplasia Workshop “Long bone pathology in [...]
The European Reference Network on rare bone diseases (ERN-Bond)
The European Reference Network on rare bone diseases (ERN-Bond) 2nd [...]
The value of ERN BOND, the European Reference Network for rare bone disease patients
The value of ERN BOND, the European Reference Network for [...]
National Workshop on Patient Rights – Dublin
The Ministry for Health and Active Ageing is pleased to [...]
Conference Asitoi 2024: “PASSWORD, unlock your quality of life”
Bologna, Italy - June 14 - 16, 2024 - The 40th [...]
EURORDIS Open Letter to the European Commission – read and sign it
EURORDIS calls for action: EURORDIS, a leading European rare disease [...]
ERN BOND ePAG Hybrid Meeting
We are pleased to announce the upcoming hybrid ERN BOND [...]
Characterization of three adults and an adolescent with Osteogenesis Imperfecta type VI and a novel founder SERPINF1 variant
Characterization of three adults and an adolescent with Osteogenesis Imperfecta [...]
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