Adapting to Adulthood: A Review of Transition Strategies for Osteogenesis Imperfecta
Adapting to Adulthood: A Review of Transition Strategies for Osteogenesis [...]
7th annual UCD Centre for Arthritis Research (CAR) Public and Patient Involvement (PPI) Conference
Rare Bone stories from an Endocrinologist 7th annual UCD Centre [...]
ERDERA’s 2025 Joint Call for Rare Disease Therapy Proposals
The European Rare Diseases Research Alliance (ERDERA) has announced its 2025 Joint Transnational [...]
Nature-based interventions for individuals with rare skeletal disorders: evaluation of a 5-day sailing program on health-related quality of life
Nature-based interventions for individuals with rare skeletal disorders: evaluation of [...]
ERN-EYE Scientific Workshop
The next ERN-EYE Scientific Workshop will take place in Madrid, [...]
c4c International Symposium
c4c will host an international symposium, a two-day event this [...]
La real world evidence nell’osteogenesi imperfetta, progetto SATURN
La real world evidence nell’osteogenesi imperfetta, progetto SATURN (IT) PharmaStarTV [...]
ERN-EuroBloodNet Progress Meetings
The ERN-EuroBloodNet Progress Meetings, are organized every autumn by the ERN-EuroBloodNet Coordination [...]
7th annual UCD Centre for Arthritis Research (CAR) Public and Patient Involvement (PPI) Conference
7th Annual Conference will take place on November 6th, entitled [...]
Skeletal Dysplasias Summit 2024
Making a Difference for Rare Diseases and Disorders in the [...]
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