Making a Difference for Rare Diseases and Disorders in the New EU Legislature

Hosted by MEPs Jonás Fernández,Tilly Metz, Kristian Vigenin, and Andrey Kovatchev, the representative organisations of the Skeletal Dysplasias Alliance (SDA) across the EU are pleased to invite you to the 2024 Summit on ‘Making a Difference for Rare Diseases in the New EU Legislature’.

ERN BOND – WP4 co-leader, Karen Heath will be participating in the discussion on the State of play of rare diseases and skeletal dysplasias.

Hybrid meeting

Event summary

Event Skeletal Dysplasias Summit 2024
Date 5 November 2024, 11:00 – 13:00 CET
Location European Parliament – Brussels, Belgium
Registration Register here
Download Agenda