On the occasion of Rare Disease Day, the European Commission’s DG SANTE has released a new communication package dedicated to Rare Diseases and European Reference Networks (ERNs).
These materials highlight the EU’s continued commitment to improving the lives of people living with rare and complex conditions, supporting patients, families, and healthcare professionals across Europe.
The package includes:
ERNs brochure 2026 – European Reference Networks: Working with patients with rare, low-prevalence and complex diseases.
Available via the EU Publications Office here
ERNs booklet 2025 – European Reference Networks: A success story for patients living with a rare disease (available in EN/DE/EL/FR/IT)
Rare Disease factsheet 2026 – How the European Commission works on Rare Diseases and the European Reference Networks (ERNs)
Rare Disease factsheet 2026 – EU delivering on rare diseases for patients and families
These resources provide valuable insight into the impact of ERNs and the ongoing European efforts to strengthen collaboration, knowledge sharing, and access to specialised care. 💡
Funded by the European Union
“Funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA. Neither the European Union nor the granting authority can be held responsible for them.”
