The Spinal Working Group of ICCBH Achondroplasia designed an investigation with the aim of better understanding the pathophysiology and management of spinal pathology in achondroplasia. The results will be presented at the Achondroplasia Spinal Workshop, co-organised by ERN BOND, to be held on 2 July in Dublin as part of the ICCBH meeting.
All healthcare professionals seeing patients with achondroplasia are invited to complete the survey by June 24th.
Complete the survey: https://ec.europa.eu/eusurvey/runner/SpinalWorkshopsurveyClinicians.
Please share the survey with others who may be interested.