In the past weeks, representatives of patient organizations, the European Reference Network for Rare Bone Diseases (ERN BOND) and the European Registry for Rare Bone and Mineral Conditions (EuRR-Bone) have been putting together a survey for spinal stenosis in people with Achondroplasia.
The goal is to get a broader look into medical issues regarding the spine from an individual perspective.
Overall, the survey takes less than 5 minutes. It is available in Dutch, English, French, German, Italian, Portuguese, and Spanish.
We hope that many people living in Europe can participate to have meaningful results.
Complete the survey here: