Webinars 

On the occasion of the Rare Disease Day, ERN BOND organises a series of webinars about COVID-19 and rare bone diseases in collaboration.with As.It.O.I. (Osteogenesis Imperfecta Italian Association), A.C.A.R. (Italian Association on Multiple osteochondromas, Maffucci syndrome and Ollier disease) and UNIAMO FIMR (Italian Federation on rare diseases).

The events have the patronage of FondazioneTelethon  (Italian non-profit organisation fostering rare disease research), BBMRI.it (the Italian node of the European research infrastructure for biobanking) and Istituto Superiore di Sanità, (the Italian health institute).

All the webinars will be in Italian.

 

  • January 21st, 7 pm CET

COVID-19: trattamento farmacologico e di supporto per pazienti affetti da OI (COVID-19 and indications for patients with OI)

Recording of the webinar will be soon available

 

  • January 28th, 7 pm CET

COVID-19 e vaccini (COVID-19 and vaccines)

Recording of the webinar will be soon available

 

  • February 22nd, 7 pm CET

COVID-19 e emergenza psicologica (COVID-19 and psychological impact)

Recording of the webinar will be soon available

 

  • March 4th, 7 pm CET

Tools per il follow-up a distanza dei pazienti affetti da malattie rare scheletriche (Tools for remotely following up patients with rare skeletal diseases) 

Recording of the webinar will be soon available

 

  • March 18th, 7 pm CET
Il ruolo del campione biologico nella ricerca scientifica (Biological material in scientific research)  
  • Introduzione su campione biologico e importanza della conservazione – Luca Sangiorgi
  • Attività istituzionali – Luisa Minghetti
  • Focus su Sangue e derivati – Luca Sangiorgi
  • Focus su Biopsie liquide – MariaGrazia Daidone
  • Focus su Linee Cellulari – Chiara Baldo
  • Focus su iPSc – Giuseppe Merla
  • Conclusioni
 

Recording of the webinar will be soon available

 

  • March 31st, 7 pm CET

 Il trattamento dell’OI; sicurezze nell’epoca del COVID-19 (OI and safety during COVID-19)

Speakers: Dr. Vittorio Landoni and Dr. Mauro Celli

Join Zoom Meeting
https://us02web.zoom.us/j/84433028433…

Meeting ID: 844 3302 8433
Passcode: 838374