Webinars 

On the occasion of the Rare Disease Day, ERN BOND organises a series of webinars about COVID-19 and rare bone diseases in collaboration.with As.It.O.I. (Osteogenesis Imperfecta Italian Association), A.C.A.R. (Italian Association on Multiple osteochondromas, Maffucci syndrome and Ollier disease) and UNIAMO FIMR (Italian Federation on rare diseases) and with the patronage of FondazioneTelethon  (Italian non-profit organisation fostering rare disease research).

All the webinars will be in Italian.

 

  • January 21st, 7 pm CET

COVID-19: trattamento farmacologico e di supporto per pazienti affetti da OI (COVID-19 and indications for patients with OI)

Attend the webinar by clicking here

 

  • January 28th, 7 pm CET

COVID-19 e vaccini (COVID-19 and vaccines)

Link for attending will be available here soon

 

  • February 22nd, 7 pm CET

COVID-19 e emergenza psicologica (COVID-19 and psychological impact)

Link for attending will be available here soon

 

  • March 4th, 7 pm CET

Tools per il follow-up a distanza dei pazienti affetti da malattie rare scheletriche (Tools for remotely following up patients with rare skeletal diseases) 

Link for attending will be available here soon