Webinars2023-02-22T10:52:53+01:00

Webinars

ERN BOND webinars are aimed at prompting education and training on rare bone diseases and addressed to healthcare professionals, patients and patients groups in order to increase knowledge on rare bone diseases.

These webinars are free to join, however pre-registration is required.

Upcoming webinars

Framework for Patient Engagement in Clinical Trials

Wednesday May 24th 2023 from 15:00 to 16:00 CEST

Speakers: Virginie Hivert and María Cavaller Bellaubi, EURORDIS- Rare Diseases Europe

Organised by ERICA in collaboration with EJP RD and ERN BOND

Register

Past webinars

Introduction on Patient-Reported Outcomes and considerations before including them in a clinical trial. Study case from the ERN-EuroBloodNet

Wednesday May 10th 2023 from 12:30 to 13:30 CEST

Speakers: Céline Desvignes-Gleizes, Mapi Research Trust, Andreas Glenthøj, hematologist clinician, Dore Peereboom, Stichting Zeldzame Bloedziekten

Organised by ERICA in collaboration with EJP RD and ERN BOND

Definition of orphan drug by the EMA

Tuesday March 28th 2023 from 12:30 to 13:30 CET

Speaker: Armando Magrelli, Istituto Superiore di Sanità (ISS) Roma, Italy

Organised by ERICA in collaboration with EJP RD and ERN BOND

 

Melorheostosis – Webinar series in rare bone disease

1st part:  Tuesday February 7th 2023 from 16:00 to 17:00 CET

2nd part: Tuesday March 14th 2023 from 16:00 to 17:00 CET

Hosts: Natasha Appelman-Dijkstre, Natalie Butterfield

Speaker: Geert Mortier

Co-organizing with ECTS

 

ERN-BOND, the last five years and the future.

ERN BOND webinars are aimed at prompting education and training on rare bone diseases and addressed to healthcare professionals, patients and patients groups in order to increase knowledge on rare bone diseases.

Speaker: Luca Sangiorgi

view replay

ERN BOND Webinar: Human Body Movement & Scan Analyses

ERN BOND webinars are aimed at prompting education and training on rare bone diseases and addressed to healthcare professionals, patients and patients groups in order to increase knowledge on rare bone diseases.

view replay

FD/MAS a joined venture

Tuesday September 7th 2021
Speakers: Prof. Michiel van de Sande and Dr. N. M. Appelman-Dijkstra

REPLAY NOT AVAILABLE

ernbond

ERN-BOND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Commission. For more information about the ERNs and the EU health strategy, please visit ec.europa.eu/health/ern

erns
Co-funded by the European Union
ERN BOND Specific Grant Agreement no. 101085766

regione emilia romagna

Coordinating Center
Istituto Ortopedico Rizzoli
via G.C.Pupilli, 1 – 40136 Bologna – Italy

euThe contents of this website represents the views of the network and
is its sole responsibility; and do not necessarily reflect the opinion of the European Union

Go to Top