ERN BOND webinars are aimed at prompting education and training on rare bone diseases and addressed to healthcare professionals, patients and patients groups in order to increase knowledge on rare bone diseases.
These webinars are free to join, however pre-registration is required.
The programme of the upcoming webinars will be published soon
On the occasion of the Rare Disease Day, ERN BOND organises a series of webinars about COVID-19 and rare bone diseases in collaboration.with As.It.O.I. (Osteogenesis Imperfecta Italian Association), A.C.A.R. (Italian Association on Multiple osteochondromas, Maffucci syndrome and Ollier disease) and UNIAMO FIMR (Italian Federation on rare diseases).
The events have the patronage of FondazioneTelethon (Italian non-profit organisation fostering rare disease research), BBMRI.it (the Italian node of the European research infrastructure for biobanking) and Istituto Superiore di Sanità, (the Italian health institute).
All the webinars will be in Italian