Conference “Rare Diseases in the EU: Joint Action shaping the future of ERNs”
JARDIN kick-off meeting This will take place on 6-7th March [...]
Registries Symposium 2024
We are excited to announce that the 2024 Registries Symposium [...]
Rare Disease Clinical Trials Conference in Dublin!
Rare Disease Clinical Trials Conference happening on February 29th and [...]
“A TUTTO ERN”
“A TUTTO ERN” one-day conference for medical and health students, [...]
The clinical management of children with achondroplasia in Italy: results of clinician and parent/caregiver surveys
The clinical management of children with achondroplasia in Italy: results [...]
Italia capofila delle Reti di Riferimento Europee per le malattie rare (IT)
Italia capofila delle Reti di Riferimento Europee per le malattie [...]
Italia capofila delle Reti di Riferimento Europee per le malattie rare. Progetto “A TUTTO ERN” (IT)
Italia capofila delle Reti di Riferimento Europee per le malattie [...]
Secondary peripheral chondrosarcoma in multiple osteochondromas: a retrospective single-institution case series
Secondary peripheral chondrosarcoma in multiple osteochondromas: a retrospective single-institution case [...]
EURORDIS annual Black Pearl Awards
The 13th edition of the awards took place on Tuesday, [...]
Funded by the European Union
“Funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA. Neither the European Union nor the granting authority can be held responsible for them.”
