Rare osteochondral disorders: the ERN-BOND experience
Rare osteochondral disorders: the ERN-BOND experience EJP RD - ERN [...]
Survey for patients/caregivers: Limb Lengthening in people with Achondroplasia – Choices and Experiences
This survey, supported by ERN BOND, aims to understand the [...]
Survey for HCPs on the use of artificial intelligence in the diagnostic process of rare bone diseases
Klaus Mohnike from the ERN BOND HCP University of Magdeburg, [...]
La risposta del Sud alle malattie rare
La risposta del Sud alle malattie rare (IT) Mondosanità, 18/03/2024 [...]
Bone Curriculum Symposium and theBone Curriculum Symposium and the PreSymposium on Rare Bone Diseases
Bone Curriculum Symposium and theBone Curriculum Symposium and the PreSymposium [...]
Data collection on rare bone and mineral conditions in Europe: The landscape of registries and databases
Data collection on rare bone and mineral conditions in Europe: [...]
Achondroplasia: Update on diagnosis, follow-up and treatment
Achondroplasia: Update on diagnosis, follow-up and treatment Leiva-Gea, Antonio et [...]
Optimising the diagnosis and referral of achondroplasia in Europe: European Achondroplasia Forum best practice recommendations
Optimising the diagnosis and referral of achondroplasia in Europe: European [...]
Vitamin D and calcium intakes in general pediatric populations: A French expert consensus paper
Vitamin D and calcium intakes in general pediatric populations: A [...]
International Consensus Statement on the diagnosis, multidisciplinary management and lifelong care of individuals with achondroplasia
International Consensus Statement on the diagnosis, multidisciplinary management and lifelong [...]
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“Funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA. Neither the European Union nor the granting authority can be held responsible for them.”
