La real world evidence nell’osteogenesi imperfetta, progetto SATURN (IT)
La real world evidence nell’osteogenesi imperfetta, progetto SATURN (IT) PharmaStarTV, [...]
ERN-EuroBloodNet Progress Meetings
The ERN-EuroBloodNet Progress Meetings, are organized every autumn by the ERN-EuroBloodNet Coordination [...]
7th annual UCD Centre for Arthritis Research (CAR) Public and Patient Involvement (PPI) Conference
7th Annual Conference will take place on November 6th, entitled [...]
Skeletal Dysplasias Summit 2024
Making a Difference for Rare Diseases and Disorders in the [...]
Fully-instrumented gait analysis (FGA) in rare bone diseases – a scoping review of the literature
Fully-instrumented gait analysis (FGA) in rare bone diseases - a [...]
Mapping EuRREB (EuRRECa and EuRR-Bone) participating centres
The EuRREB registries (EuRRECa and EuRR-Bone) are conducting a mapping [...]
ERDERA’s Launch Event
ERDERA was launched in September 2024 with a remarkable budget [...]
Fundacion ALPE national conference 2024
Fundacion ALPE national conference for patients and families Organized by [...]
Rare diseases and paediatrics
Rare diseases and paediatrics Metabolic Bone Diseases and Frailty: science [...]
The italian initiative on fragility fractures
World Osteoporosis Day (WOD), celebrated every year on 20 October, [...]
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