ACAR Aps Conference
Transversal collaboration to support research and improve the quality of [...]
National workshop: Cross-border healthcare: patients’ rights and cooperation between EU Member States
In cooperation with the European Commission, the Italian Ministry for [...]
7th Hybrid Meeting of the Hospital Universitario la Paz Skeletal dysplasia Multidisciplinary Unit (UMDE-ERN BOND) Madrid
7th Hybrid Meeting of the Hospital Universitario la Paz Skeletal [...]
Conference “Rare Diseases in the EU: Joint Action shaping the future of ERNs”
JARDIN kick-off meeting This will take place on 6-7th March [...]
Registries Symposium 2024
We are excited to announce that the 2024 Registries Symposium [...]
Rare Disease Clinical Trials Conference in Dublin!
Rare Disease Clinical Trials Conference happening on February 29th and [...]
“A TUTTO ERN”
“A TUTTO ERN” one-day conference for medical and health students, [...]
The clinical management of children with achondroplasia in Italy: results of clinician and parent/caregiver surveys
The clinical management of children with achondroplasia in Italy: results [...]
Secondary peripheral chondrosarcoma in multiple osteochondromas: a retrospective single-institution case series
Secondary peripheral chondrosarcoma in multiple osteochondromas: a retrospective single-institution case [...]
EURORDIS annual Black Pearl Awards
The 13th edition of the awards took place on Tuesday, [...]
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