Clinical practice recommendations for the diagnosis and management of X-linked hypophosphataemia
Clinical practice recommendations for the diagnosis and management of X-linked [...]
Natural history studies from the SATURN Project to the Italian O.I. Registry
Natural history studies from the SATURN Project to the Italian [...]
Course with international participation “multidisciplinary diagnosis and management in skeletal dysplasias”
Course with international participation "multidisciplinary diagnosis and management in skeletal [...]
ERN BOND Endorsed Event: Bone Specialist Club 2025: A New Educational Course on Fragile Bone Diseases
We are pleased to announce the upcoming Bone Specialist Club [...]
Differences in gait parameters between children with achondroplasia and an age-matched control group of typically developed children in the age range of 6 to 12 years
Differences in gait parameters between children with achondroplasia and an [...]
Multidisciplinary management and translational research in rare skeletal disorders: our experience as an ern bond expert center
Multidisciplinary management and translational research in rare skeletal disorders: our [...]
National Plan for Rare Diseases and European Reference Network
National Plan for Rare Diseases and European Reference Network 3rd [...]
Skeletal Dysplasias – Overview, European Reference Network on Rare Bone Disorders (ERN BOND) and case discussion using CPMS 2.0 platform
Skeletal Dysplasias - Overview, European Reference Network on Rare Bone [...]
10th Plenary meeting for representatives of ERN BOND at Leiden University Medical Center
We are pleased to announce that [...]
4th ERN BOND ITALIA hybrid meeting
ERN BOND Italia_draft_v4_ We are pleased to announce that [...]
Funded by the European Union
“Funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA. Neither the European Union nor the granting authority can be held responsible for them.”
