Implementing Patient-Centred Care in OI 15th International Conference on Osteogenesis [...]
About Giusi
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ECRD 2026: Poster abstract submissions are now open
Take the opportunity to present your work at the next [...]
Osteogenesi imperfetta, diagnosi tardive o assenti per le forme lievi
Osteogenesi imperfetta, diagnosi tardive o assenti per le forme lievi [...]
Podcast: Rare on Air
Inês Alves on the power of lived experience in shaping [...]
HLM Rare 2025
Secure your spot: Registration is open for on-site or online participation [...]
Verona Hosts Free Seminar on Rare Bone Diseases: Focus on OI, XLH and HPP
On November 14, 2025, the Centro Culturale Marani at the [...]
Clinical decision-making in Rare Bone Diseases: A survey among EPOS and ERN-BOND members
Clinical decision-making in Rare Bone Diseases: A survey among EPOS [...]
Open Day on Rare Skeletal Diseases at the Rizzoli Orthopaedic Institute – October 31, 2025
Open Day on Rare Skeletal Diseases at the Rizzoli [...]
Workshop on international guidelines on XLH on Wednesday 29 October
REGISTER NOW for the free, virtual workshop on The new [...]






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