admin, Author at ERN BOND

The purpose of the Slovenian ERN HUB

The purpose of the Slovenian ERN HUB (EN) European Reference [...]

The purpose of the Slovenian ERN HUBadmin2024-01-12T16:29:13+01:00

‘Bone Curriculum’ Symposium & ‘Pre-Symposium on Rare Bone Diseases’ (EN) [...]

‘Bone Curriculum’ Symposium & ‘Pre-Symposium on Rare Bone Diseases’ (endorsed by ERN BOND)admin2024-01-15T16:18:12+01:00

Evolving Achondroplasia Care: Relationship Between Height and Quality of Life [...]

Evolving Achondroplasia Care: Relationship Between Height and Quality of Lifeadmin2024-01-15T16:23:29+01:00

Role of biobanks in European Reference Networks (EN) Rare Disease [...]

Role of biobanks in European Reference Networks (ERN)admin2024-01-15T17:33:47+01:00

ERN BOND updates (EN) Lars Sävendah ESPE RDAG Web Conference [...]

ERN BOND updatesadmin2022-10-11T11:20:31+02:00

ECTS Webinar Series Rare Bone Diseases: Osteogenesis Imperfecta (PT) Oliver [...]

ECTS Webinar Series Rare Bone Diseases: Osteogenesis Imperfectaadmin2022-10-11T11:20:15+02:00

The European Reference Network for Rare Bone Disorders - ERN [...]

The European Reference Network for Rare Bone Disorders – ERN BONDadmin2022-10-11T11:19:46+02:00

Pathophysiology and treatment of Autosomal Recessive Osteopetrosis: past, present and [...]

Pathophysiology and treatment of Autosomal Recessive Osteopetrosis: past, present and futureadmin2022-10-11T10:59:49+02:00

Addressing delays in the diagnosis and referral of achondroplasia (EN) [...]

Addressing delays in the diagnosis and referral of achondroplasiaadmin2022-10-11T11:04:51+02:00

"Behandelbare Wachstumsstörungen" (DE) Klaus Mohnike Medikamentöse Therapieoptionen bei Kleinwuchs 22/01/2021 [...]

“Behandelbare Wachstumsstörungen”admin2022-10-11T11:17:30+02:00