Leaving the darkness: Tackling rare bone diseases (English)
Leaving the darkness: Tackling rare bone diseases (EN) Natasha Appelman-Dijkstra [...]
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Interview with Inês Alves, patient representative in ERN BOND
Interview with Inês Alves, patient representative in ERN BOND Inês [...]
ESPE Newsletter no. 37
BOND: European Reference Network on Rare Bone Diseases(IT) ESPE Newsletter [...]
Fostering research in rare bone conditions (English)
Fostering research in rare bone conditions (EN) Rare revolution digital [...]
Finding and treating rare disorders in the general bone clinic
Finding and treating rare disorders in the general bone clinic [...]
Displasias ósseas
Displasias ósseas (PT) 49º Congresso Português de Neonatologia, Online, 8-9/04/2021 [...]
Osteogenesis Imperfecta em Diagnóstico Pré-Natal – casuística de 11 anos
Osteogenesis Imperfecta em Diagnóstico Pré-Natal - casuística de 11 anos [...]
Successful Treatment of Achondroplasia in Children
Successful Treatment of Achondroplasia in Children (EN) 10th Annual Pediatric [...]
European Registries for Rare Endocrine Conditions (EuRRECa): the Use of an e-Reporting Tool for Registering Calcium and Phosphate Conditions
European Registries for Rare Endocrine Conditions (EuRRECa): the Use of [...]
Leaving the darkness: Tackling rare bone diseases
Leaving the darkness: Tackling rare bone diseases (EN) Leaving the [...]
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