Secure your spot: Registration is open for on-site or online participation at HLM Rare 2025

Registration is now open for the upcoming High-Level Meeting (HLM) on building a European Research and Innovation Ecosystem for Rare Diseases, scheduled for 9–11 December 2025 in Brussels.

A three-day meeting dedicated to forging a robust research & innovation ecosystem for rare diseases in the EU.

This event will gather key stakeholders, including EU policymakers, industry leaders, patient advocacy groups, researchers, and healthcare providers  to identify concrete actions and incentives to enhance innovation across the rare disease ecosystem.

Event summary

Event HLM Rare 2025
Date 9–11 December 2025
Location Brussels, Belgium
Registration Register for event
Download Programme