How to design a registry for undiagnosed patients in the framework of rare disease diagnosis: suggestions on software, data set and coding system
Berger A et al. Orphanet J Rare Dis. 2021;16(1):198
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ERN BOND Specific Grant Agreement no. 101157116
Coordinating Center
Istituto Ortopedico Rizzoli
via G.C.Pupilli, 1 – 40136 Bologna – Italy
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