Recruiting the right participants for clinical trials is challenging.
In rare and ultra-rare diseases, it becomes even more complex.
That’s why RealiseD_ihi has launched the Rare Disease Clinical Trial Enrolment Questionnaire, a multi-stakeholder survey designed to better understand the barriers and enablers affecting enrolment.
They are seeking perspectives from:
• Clinicians
• Academics
• Industry representatives
• Regulators
• Academic developers
• Patient representatives
The survey explores three key areas:
- Trial Site & Structural Factors
(Logistics, staffing, data tools, data sharing) - Trial Design & Operational Factors
(Design, location, duration, participant experience and information needs) - Patient-Level & Disease Factors
(Age, severity, treatment landscape, disease impact)
📌 The questionnaire is anonymous.
📌 Only collective data will be shared.
📌 Open until 28 January 2026.
At ERN BOND, we encourage all relevant stakeholders to take part and support this important initiative.
👉 Take the survey here:
https://lnkd.in/eCT82ENc
Funded by the European Union
“Funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA. Neither the European Union nor the granting authority can be held responsible for them.”
