If you want to contribute to the core registry and the condition specific modules of OI, Achondroplasia or FIbrous Dysplasia specifically we have PhD students that are eager to visit you and assist or put in the data in you center.

Also if you have students yourself that need training, these can be trained by our team remotely or in a crash course in Leiden.

If you want more information please connect to the registries@lumc.nl

Prof Klause Mohnike & Chady Omara (PhD student)

Dutch PhD student Chady Omara (neurosurgery) visiting prof Mohnike for the Achondroplasia module