A crucial event for the rare disease community is set to take place in Dublin. The Rare Disease Clinical Trial Network Ireland (RDCTN) has announced a one-day, in-person conference designed to foster collaboration and knowledge-sharing among leading researchers, patient advocates, industry representatives, and other key stakeholders.

The conference, hosted at O’Reilly Hall, University College Dublin (UCD), will delve into critical topics such as rare disease research methodology, translation, European Reference Network Patient Registries, and rare disease clinical trial partner perspectives. The event aims to bridge the gap between scientific advancements and the lived experiences of patients, facilitating progress in rare disease treatments.

Notably, the event will feature Prof Natasha Appelman-Dijkstra, who will present the EURREB registry. While the conference focuses on rare diseases in general, the European Reference Network on Rare Bone Diseases (ERN BOND) will be referenced extensively, highlighting its crucial role in advancing research and patient care.

Event summary

Event theme Rare Disease Research Conference 2025
Date 10 Apr 2025 09:00 – 17:30 GMT+1
Location O’Reilly Hall University College Dublin Belfield, Dublin, Ireland
Registration Register here
Agenda Programme