The EuRREB registries (EuRRECa and EuRR-Bone) are conducting a mapping exercise among ERN members. Patient registries are key in rare disease research, and understanding the characteristics of your centre will help provide a better picture of the data gathered in the registries. This survey is addressed to Endo-ERN/ERN BOND representatives.

We expect one response per centre; however, if your centre cares for both paediatric and adult patients and the responses may differ significantly, you may submit one contribution for each age group. This survey will take approximately 15 minutes to complete. Please submit your contribution by Friday, November 15.