WHA Resolution on Rare Diseases Webinar

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This year, Rare Diseases International has begun advocating for the World Health Assembly to have a Resolution on Rare Diseases in 2025, and we need your help to make it a success. This webinar, co-hosted by RDI the Arab Republic of Egypt, the State of Qatar, and Spain will be an opportunity to explain in more detail the opportunities to improve the lives of persons living with a rare disease (PLWRD) and the need to make the Resolution a reality.

Event summary

Event	WHA Resolution on Rare Diseases Webinar
Date	30 August 2024 – 2:00 pm – 3:30 pm
Registration	Register here

Giusi2024-08-27T14:12:22+02:00

ernbond

ERN-BOND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are Funded by the European Commission. For more information about the ERNs and the EU health strategy, please visit ec.europa.eu/health/ern

Funded by the European Union
ERN BOND Specific Grant Agreement no. 101157116

regione emilia romagna

Coordinating Center
Istituto Ortopedico Rizzoli
via G.C.Pupilli, 1 – 40136 Bologna – Italy

The contents of this website represents the views of the network and
is its sole responsibility; and do not necessarily reflect the opinion of the European Union

Co-funded by the European Union
ERN BOND Specific Grant Agreement no. 101157116

regione emilia romagna

Coordinating Center
Istituto Ortopedico Rizzoli
via G.C.Pupilli, 1 – 40136 Bologna – Italy

The contents of this website represents the views of the network and is its sole responsibility; and do not necessarily reflect the opinion of the European Union

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WHA Resolution on Rare Diseases Webinar

Event summary

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