This survey, supported by ERN BOND, aims to understand the choices and experiences of individuals with achondroplasia regarding limb lengthening.
The survey is available in several languages, including English, Portuguese, Polish, Spanish, Italian, German and French.
The survey is addressed to achondroplasia patients from 12 years of age or older or to parent/caregiver of a child with achondroplasia under the age of 12 years.
The results will be presented at the 3rd ISCBH/ERN BOND International Achondroplasia Workshop “Long bone pathology in children with Achondroplasia” which will take place on 22 June 2024 in Salzburg, Austria within the scope of the 11th International Conference on Children’s Bone Health – ICCBH.
An open access report will also be made available online.
Survey summary
| Survey | Limb Lengthening in people with Achondroplasia – Choices and Experiences |
| Target | achondroplasia patients from 12 years of age or older or to parent/caregiver of a child with achondroplasia under the age of 12 years |
| Deadline | 20 July 2024 |
| Survey | Conribute to the survey here |
| Language |
English, Portuguese, Polish, Spanish, Italian, German and French.
|
Funded by the European Union
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