All 24 European Reference Networks (ERNs) launch a dedicated website and social media campaign to collect information to help health professionals to find support for Ukrainian patients with rare diseases: diagnosis, treatment, advice.

Our health care providers (HCP), particularly those located in the countries currently receiving large numbers of refugees (Poland, Slovakia, Hungary, Romania) are ready to help Ukranian patients with rare/very rare diseases, for specific diagnostic procedures and treatment.

Those centers work in close cooperation with the ERNs they belong to.