BEGIN:VCALENDAR
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PRODID:-//ERN BOND - ECPv6.17.5//NONSGML v1.0//EN
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METHOD:PUBLISH
X-WR-CALNAME:ERN BOND
X-ORIGINAL-URL:https://ernbond.eu
X-WR-CALDESC:Events for ERN BOND
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:Europe/Rome
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20250330T010000
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DTSTART:20251026T010000
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TZNAME:CEST
DTSTART:20260329T010000
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TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20261025T010000
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DTSTART:20270328T010000
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DTSTART:20271031T010000
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END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260915T100000
DTEND;TZID=Europe/Rome:20260915T110000
DTSTAMP:20260910T130940Z
CREATED:20260910T130921Z
LAST-MODIFIED:20260910T130940Z
UID:9749-1789466400-1789470000@ernbond.eu
SUMMARY:CPMS 2.0 Training sessions for clinicians (CPMS 2.0 Care Application and Mobile)
DESCRIPTION:
URL:https://ernbond.eu/event/training-sessions-for-clinicians-cpms-2-0-care-application-and-mobile/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260915T170000
DTEND;TZID=Europe/Rome:20260915T180000
DTSTAMP:20260803T093700Z
CREATED:20260803T092104Z
LAST-MODIFIED:20260803T093700Z
UID:9679-1789491600-1789495200@ernbond.eu
SUMMARY:ERN BOND monthly CPMS sessions
DESCRIPTION:Event \n\n\n\nEvent\nCalendar invite\n\n\n\n\nERN BOND monthly CPMS session\nClick to add to calendar
URL:https://ernbond.eu/event/ern-bond-monthly-cpms-sessions-12/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260917T073000
DTEND;TZID=Europe/Rome:20260917T183000
DTSTAMP:20260806T102807Z
CREATED:20260806T102651Z
LAST-MODIFIED:20260806T102807Z
UID:9707-1789630200-1789669800@ernbond.eu
SUMMARY:EPOS BAT Advanced course: Rare Bone Diseases\, Bologna\, 17-18 September
DESCRIPTION:
URL:https://ernbond.eu/event/epos-bat-advanced-course-rare-bone-diseases-bologna-17-18-september/
LOCATION:Istituto Ortopedico Rizzoli Bologna\, Via di Barbiano\, 1/10\, 40136 Bologna BO\, Bologna\, Italy
ATTACH;FMTTYPE=image/png:https://ernbond.eu/wp-content/uploads/2026/07/EPOS-BAT-ADV-Rare-Bone-Diseases-SEP2026-web-banner1-800-800-p-T-97.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260918T080000
DTEND;TZID=Europe/Rome:20260918T160000
DTSTAMP:20260806T104251Z
CREATED:20260806T102915Z
LAST-MODIFIED:20260806T104251Z
UID:9710-1789718400-1789747200@ernbond.eu
SUMMARY:EPOS BAT Advanced course: Rare Bone Diseases\, Bologna\, 17-18 September
DESCRIPTION:
URL:https://ernbond.eu/event/epos-bat-advanced-course-rare-bone-diseases-bologna-17-18-september-2/
ATTACH;FMTTYPE=image/png:https://ernbond.eu/wp-content/uploads/2026/07/EPOS-BAT-ADV-Rare-Bone-Diseases-SEP2026-web-banner1-800-800-p-T-97.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260918T121000
DTEND;TZID=Europe/Rome:20260918T131000
DTSTAMP:20260806T104236Z
CREATED:20260806T103137Z
LAST-MODIFIED:20260806T104236Z
UID:9712-1789733400-1789737000@ernbond.eu
SUMMARY:EPOS BAT Advanced course joint EPOS–ERN BOND session: Perspectives from Patients and Parents Living with Rare Skeletal Disorders
DESCRIPTION:Session title\nPerspectives from Patients and Parents Living with Rare Skeletal Disorders\n\n\nDate and time\n18 September\, 2026 at 12:10 – 13:10 CEST\n\n\nDescription\nA joint EPOS–ERN BOND session placing the patient perspective at the centre of discussions on the challenges and priorities in rare skeletal disorders\, with contributions from leading European representatives of patient organisations and caregivers.\n\n\nChair\nLuca Sangiorgi\n\n\nSpeakers\n\n\nLiana La Forgia (UK) Multiple Osteochondromas (caregiver) A.C.A.R. APS (International Relations Manager) & ERN BOND ePAG \nSusana Noval Iruretagoyena (Spain) Achondroplasia (caregiver) Fundación ALPE Acondroplasia (President) & ERN BOND ePAG \nAlessandra Tolaccia (Italy) Osteogenesis Imperfecta (patient) Osteogenesis Imperfecta Federation Europe (Vice-President)
URL:https://ernbond.eu/event/epos-bat-advanced-course-joint-epos-ern-bond-perspectives-from-patients-and-parents-living-with-rare-skeletal-disorders/
LOCATION:Istituto Ortopedico Rizzoli Bologna\, Via di Barbiano\, 1/10\, 40136 Bologna BO\, Bologna\, Italy
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260923T100000
DTEND;TZID=Europe/Rome:20260923T110000
DTSTAMP:20260122T161451Z
CREATED:20260122T161451Z
LAST-MODIFIED:20260122T161451Z
UID:8951-1790157600-1790161200@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-17/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260929T180000
DTEND;TZID=Europe/Rome:20260929T190000
DTSTAMP:20260924T141522Z
CREATED:20260806T121021Z
LAST-MODIFIED:20260924T141522Z
UID:9726-1790704800-1790708400@ernbond.eu
SUMMARY:ERN BOND Internal ePAG workshop
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-internal-epag-workshop-7/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261007T160000
DTEND;TZID=Europe/Rome:20261007T170000
DTSTAMP:20260924T143218Z
CREATED:20260924T142418Z
LAST-MODIFIED:20260924T143218Z
UID:9773-1791388800-1791392400@ernbond.eu
SUMMARY:ERN BOND webinar "Transition: Beyond Transfer – A Holistic Approach to Care\, Independence and Participation"
DESCRIPTION:Register here
URL:https://ernbond.eu/event/ern-bond-webinar-transition-beyond-transfer-a-holistic-approach-to-care-independence-and-participation/
CATEGORIES:ERN BOND webinar
ATTACH;FMTTYPE=image/png:https://ernbond.eu/wp-content/uploads/2026/08/03_ERN_BOND_WEBSERIES_7OTTOBRE_1920-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261013T150000
DTEND;TZID=Europe/Rome:20261013T160000
DTSTAMP:20260910T132157Z
CREATED:20260910T131128Z
LAST-MODIFIED:20260910T132157Z
UID:9752-1791903600-1791907200@ernbond.eu
SUMMARY:CPMS 2.0 Training sessions for clinicians (CPMS 2.0 Care Application and Mobile)
DESCRIPTION:Download meeting agenda invitation
URL:https://ernbond.eu/event/cpms-2-0-training-sessions-for-clinicians-cpms-2-0-care-application-and-mobile/
CATEGORIES:CPMS 2.0 training session,WP6 meeting,WP7 meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261013T180000
DTEND;TZID=Europe/Rome:20261013T190000
DTSTAMP:20260924T153109Z
CREATED:20260924T152953Z
LAST-MODIFIED:20260924T153109Z
UID:9782-1791914400-1791918000@ernbond.eu
SUMMARY:ERN BOND Internal ePAG meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-internal-epag-meeting-8/
CATEGORIES:Meeting ePAGs
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261015T160000
DTEND;TZID=Europe/Rome:20261015T170000
DTSTAMP:20261015T151705Z
CREATED:20261015T151705Z
LAST-MODIFIED:20261015T151705Z
UID:9865-1792080000-1792083600@ernbond.eu
SUMMARY:ERN BOND-ECTS webinar: Rare bone diseases webinar series: Pregnancy in rare bone and mineral disorders
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-ects-webinar-rare-bone-diseases-webinar-series-pregnancy-in-rare-bone-and-mineral-disorders/
CATEGORIES:ERN BOND webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261016T140000
DTEND;TZID=Europe/Rome:20261016T150000
DTSTAMP:20260929T161422Z
CREATED:20260122T161859Z
LAST-MODIFIED:20260929T161422Z
UID:8955-1792159200-1792162800@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-18/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261020T170000
DTEND;TZID=Europe/Rome:20261020T180000
DTSTAMP:20260122T150717Z
CREATED:20260122T150717Z
LAST-MODIFIED:20260122T150717Z
UID:8895-1792515600-1792519200@ernbond.eu
SUMMARY:ERN BOND monthly CPMS sessions
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-monthly-cpms-sessions-9/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261027T160000
DTEND;TZID=Europe/Rome:20261027T170000
DTSTAMP:20261008T092249Z
CREATED:20260924T143303Z
LAST-MODIFIED:20261008T092249Z
UID:9775-1793116800-1793120400@ernbond.eu
SUMMARY:WP2 meeting
DESCRIPTION:
URL:https://ernbond.eu/event/wp2-meeting/
CATEGORIES:WP2 meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261027T180000
DTEND;TZID=Europe/Rome:20261027T190000
DTSTAMP:20261015T150518Z
CREATED:20260924T143459Z
LAST-MODIFIED:20261015T150518Z
UID:9777-1793124000-1793127600@ernbond.eu
SUMMARY:ERN BOND ePAG & Coordination meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-epag-coordination-meeting-3/
CATEGORIES:Meeting ePAGs
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261028T100000
DTEND;TZID=Europe/Rome:20261028T110000
DTSTAMP:20260122T161934Z
CREATED:20260122T161934Z
LAST-MODIFIED:20260122T161934Z
UID:8957-1793181600-1793185200@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-19/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261029T153000
DTEND;TZID=Europe/Rome:20261029T163000
DTSTAMP:20261008T113158Z
CREATED:20260226T170222Z
LAST-MODIFIED:20261008T113158Z
UID:9185-1793287800-1793291400@ernbond.eu
SUMMARY:WP7 meeting
DESCRIPTION:
URL:https://ernbond.eu/event/wp7-meeting-4/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261110T170000
DTEND;TZID=Europe/Rome:20261110T180000
DTSTAMP:20261021T064727Z
CREATED:20260122T150833Z
LAST-MODIFIED:20261021T064727Z
UID:8897-1794330000-1794333600@ernbond.eu
SUMMARY:ERN BOND bimonthly WP4 meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-bimonthly-wp4-meeting-5/
CATEGORIES:WP4 meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261110T180000
DTEND;TZID=Europe/Rome:20261110T190000
DTSTAMP:20260924T153725Z
CREATED:20260924T153725Z
LAST-MODIFIED:20260924T153725Z
UID:9789-1794333600-1794337200@ernbond.eu
SUMMARY:ERN BOND Internal ePAG meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-internal-epag-meeting-9/
CATEGORIES:Meeting ePAGs
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261113T140000
DTEND;TZID=Europe/Rome:20261113T150000
DTSTAMP:20260122T162010Z
CREATED:20260122T162010Z
LAST-MODIFIED:20260122T162010Z
UID:8959-1794578400-1794582000@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-20/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261117T160000
DTEND;TZID=Europe/Rome:20261117T170000
DTSTAMP:20261015T151443Z
CREATED:20260924T153608Z
LAST-MODIFIED:20261015T151443Z
UID:9786-1794931200-1794934800@ernbond.eu
SUMMARY:ERN BOND Webinar: Cartilage-hair hypoplasia - a rare skeletal dysplasia with immunodeficiency
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-webinar-cartilage-hair-hypoplasia-a-rare-skeletal-dysplasia-with-immunodeficiency/
CATEGORIES:ERN BOND webinar
ATTACH;FMTTYPE=image/png:https://ernbond.eu/wp-content/uploads/2026/09/01_ERN_BOND_WEBSERIES_COPERTINA_1920-OUTI-MAKITIE-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261117T170000
DTEND;TZID=Europe/Rome:20261117T180000
DTSTAMP:20261021T064839Z
CREATED:20260122T150923Z
LAST-MODIFIED:20261021T064839Z
UID:8899-1794934800-1794938400@ernbond.eu
SUMMARY:ERN BOND monthly CPMS sessions
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-monthly-cpms-sessions-10/
CATEGORIES:ERN BOND CPMS session
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261118T173000
DTEND;TZID=Europe/Rome:20261118T183000
DTSTAMP:20260122T151834Z
CREATED:20260122T151036Z
LAST-MODIFIED:20260122T151834Z
UID:8901-1795023000-1795026600@ernbond.eu
SUMMARY:ERN BOND WP8 meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-wp8-meeting-6/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261124T180000
DTEND;TZID=Europe/Rome:20261124T190000
DTSTAMP:20260924T154103Z
CREATED:20260924T153801Z
LAST-MODIFIED:20260924T154103Z
UID:9791-1795543200-1795546800@ernbond.eu
SUMMARY:ERN BOND Internal ePAG workshop
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-internal-epag-workshop-9/
CATEGORIES:Meeting ePAGs
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261125T100000
DTEND;TZID=Europe/Rome:20261125T110000
DTSTAMP:20260122T162125Z
CREATED:20260122T162125Z
LAST-MODIFIED:20260122T162125Z
UID:8961-1795600800-1795604400@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-21/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261209T170000
DTEND;TZID=Europe/Rome:20261209T180000
DTSTAMP:20260122T151932Z
CREATED:20260122T151932Z
LAST-MODIFIED:20260122T151932Z
UID:8903-1796835600-1796839200@ernbond.eu
SUMMARY:ERN BOND WP6 meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-wp6-meeting-4/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261211T140000
DTEND;TZID=Europe/Rome:20261211T150000
DTSTAMP:20260122T162217Z
CREATED:20260122T162217Z
LAST-MODIFIED:20260122T162217Z
UID:8963-1796997600-1797001200@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-22/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261214T160000
DTEND;TZID=Europe/Rome:20261214T170000
DTSTAMP:20260924T154427Z
CREATED:20260924T154316Z
LAST-MODIFIED:20260924T154427Z
UID:9793-1797264000-1797267600@ernbond.eu
SUMMARY:ERN BOND Webinar: Diagnostic dilemmas in patients with hypophosphatasemia
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-webinar-diagnostic-dilemmas-in-patients-with-hypophosphatasemia/
CATEGORIES:ERN BOND webinar
ATTACH;FMTTYPE=image/png:https://ernbond.eu/wp-content/uploads/2026/09/04_ERN_BOND_WEBSERIES_14_DICEMBRE_1920-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261215T170000
DTEND;TZID=Europe/Rome:20261215T180000
DTSTAMP:20260122T152029Z
CREATED:20260122T152001Z
LAST-MODIFIED:20260122T152029Z
UID:8905-1797354000-1797357600@ernbond.eu
SUMMARY:ERN BOND monthly CPMS sessions
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-monthly-cpms-sessions-11/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261215T180000
DTEND;TZID=Europe/Rome:20261215T190000
DTSTAMP:20260924T154513Z
CREATED:20260924T154513Z
LAST-MODIFIED:20260924T154513Z
UID:9796-1797357600-1797361200@ernbond.eu
SUMMARY:ERN BOND ePAG & Coordination meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-epag-coordination-meeting-4/
CATEGORIES:Meeting ePAGs
END:VEVENT
END:VCALENDAR