BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//ERN BOND - ECPv6.17.2//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:ERN BOND
X-ORIGINAL-URL:https://ernbond.eu
X-WR-CALDESC:Events for ERN BOND
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:Europe/Rome
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20250330T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20251026T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20260329T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20261025T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20270328T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20271031T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261028T100000
DTEND;TZID=Europe/Rome:20261028T110000
DTSTAMP:20260122T161934Z
CREATED:20260122T161934Z
LAST-MODIFIED:20260122T161934Z
UID:8957-1793181600-1793185200@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-19/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261020T170000
DTEND;TZID=Europe/Rome:20261020T180000
DTSTAMP:20260122T150717Z
CREATED:20260122T150717Z
LAST-MODIFIED:20260122T150717Z
UID:8895-1792515600-1792519200@ernbond.eu
SUMMARY:ERN BOND monthly CPMS sessions
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-monthly-cpms-sessions-9/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261020T153000
DTEND;TZID=Europe/Rome:20261020T163000
DTSTAMP:20260319T141526Z
CREATED:20260226T170222Z
LAST-MODIFIED:20260319T141526Z
UID:9185-1792510200-1792513800@ernbond.eu
SUMMARY:WP7 meeting
DESCRIPTION:
URL:https://ernbond.eu/event/wp7-meeting-4/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261015T160000
DTEND;TZID=Europe/Rome:20261015T170000
DTSTAMP:20260223T163120Z
CREATED:20260223T163120Z
LAST-MODIFIED:20260223T163120Z
UID:9166-1792080000-1792083600@ernbond.eu
SUMMARY:Rare bone diseases webinar series: Pregnancy in rare bone and mineral
DESCRIPTION:
URL:https://ernbond.eu/event/rare-bone-diseases-webinar-series-pregnancy-in-rare-bone-and-mineral/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261014T170000
DTEND;TZID=Europe/Rome:20261014T180000
DTSTAMP:20260122T161803Z
CREATED:20260122T161723Z
LAST-MODIFIED:20260122T161803Z
UID:8953-1791997200-1792000800@ernbond.eu
SUMMARY:ERN BOND WP6 meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-wp6-meeting-5/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261009T140000
DTEND;TZID=Europe/Rome:20261009T150000
DTSTAMP:20260122T161859Z
CREATED:20260122T161859Z
LAST-MODIFIED:20260122T161859Z
UID:8955-1791554400-1791558000@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-18/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260925T180000
DTEND;TZID=Europe/Rome:20260925T190000
DTSTAMP:20260806T122832Z
CREATED:20260806T121021Z
LAST-MODIFIED:20260806T122832Z
UID:9726-1790359200-1790362800@ernbond.eu
SUMMARY:ERN BOND Internal ePAG workshop
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-internal-epag-workshop-7/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260923T100000
DTEND;TZID=Europe/Rome:20260923T110000
DTSTAMP:20260122T161451Z
CREATED:20260122T161451Z
LAST-MODIFIED:20260122T161451Z
UID:8951-1790157600-1790161200@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-17/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260918T121000
DTEND;TZID=Europe/Rome:20260918T131000
DTSTAMP:20260806T104236Z
CREATED:20260806T103137Z
LAST-MODIFIED:20260806T104236Z
UID:9712-1789733400-1789737000@ernbond.eu
SUMMARY:EPOS BAT Advanced course joint EPOS–ERN BOND session: Perspectives from Patients and Parents Living with Rare Skeletal Disorders
DESCRIPTION:Session title\nPerspectives from Patients and Parents Living with Rare Skeletal Disorders\n\n\nDate and time\n18 September\, 2026 at 12:10 – 13:10 CEST\n\n\nDescription\nA joint EPOS–ERN BOND session placing the patient perspective at the centre of discussions on the challenges and priorities in rare skeletal disorders\, with contributions from leading European representatives of patient organisations and caregivers.\n\n\nChair\nLuca Sangiorgi\n\n\nSpeakers\n\n\nLiana La Forgia (UK) Multiple Osteochondromas (caregiver) A.C.A.R. APS (International Relations Manager) & ERN BOND ePAG \nSusana Noval Iruretagoyena (Spain) Achondroplasia (caregiver) Fundación ALPE Acondroplasia (President) & ERN BOND ePAG \nAlessandra Tolaccia (Italy) Osteogenesis Imperfecta (patient) Osteogenesis Imperfecta Federation Europe (Vice-President)
URL:https://ernbond.eu/event/epos-bat-advanced-course-joint-epos-ern-bond-perspectives-from-patients-and-parents-living-with-rare-skeletal-disorders/
LOCATION:Istituto Ortopedico Rizzoli Bologna\, Via di Barbiano\, 1/10\, 40136 Bologna BO\, Bologna\, Italy
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260918T080000
DTEND;TZID=Europe/Rome:20260918T160000
DTSTAMP:20260806T104251Z
CREATED:20260806T102915Z
LAST-MODIFIED:20260806T104251Z
UID:9710-1789718400-1789747200@ernbond.eu
SUMMARY:EPOS BAT Advanced course: Rare Bone Diseases\, Bologna\, 17-18 September
DESCRIPTION:
URL:https://ernbond.eu/event/epos-bat-advanced-course-rare-bone-diseases-bologna-17-18-september-2/
ATTACH;FMTTYPE=image/png:https://ernbond.eu/wp-content/uploads/2026/07/EPOS-BAT-ADV-Rare-Bone-Diseases-SEP2026-web-banner1-800-800-p-T-97.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260917T073000
DTEND;TZID=Europe/Rome:20260917T183000
DTSTAMP:20260806T102807Z
CREATED:20260806T102651Z
LAST-MODIFIED:20260806T102807Z
UID:9707-1789630200-1789669800@ernbond.eu
SUMMARY:EPOS BAT Advanced course: Rare Bone Diseases\, Bologna\, 17-18 September
DESCRIPTION:
URL:https://ernbond.eu/event/epos-bat-advanced-course-rare-bone-diseases-bologna-17-18-september/
LOCATION:Istituto Ortopedico Rizzoli Bologna\, Via di Barbiano\, 1/10\, 40136 Bologna BO\, Bologna\, Italy
ATTACH;FMTTYPE=image/png:https://ernbond.eu/wp-content/uploads/2026/07/EPOS-BAT-ADV-Rare-Bone-Diseases-SEP2026-web-banner1-800-800-p-T-97.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260916T173000
DTEND;TZID=Europe/Rome:20260916T183000
DTSTAMP:20260122T150555Z
CREATED:20260122T150555Z
LAST-MODIFIED:20260122T150555Z
UID:8893-1789579800-1789583400@ernbond.eu
SUMMARY:ERN BOND WP8 meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-wp8-meeting-5/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260915T170000
DTEND;TZID=Europe/Rome:20260915T180000
DTSTAMP:20260803T093700Z
CREATED:20260803T092104Z
LAST-MODIFIED:20260803T093700Z
UID:9679-1789491600-1789495200@ernbond.eu
SUMMARY:ERN BOND monthly CPMS sessions
DESCRIPTION:Event \n\n\n\nEvent\nCalendar invite\n\n\n\n\nERN BOND monthly CPMS session\nClick to add to calendar
URL:https://ernbond.eu/event/ern-bond-monthly-cpms-sessions-12/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260911T140000
DTEND;TZID=Europe/Rome:20260911T150000
DTSTAMP:20260122T161403Z
CREATED:20260122T161403Z
LAST-MODIFIED:20260122T161403Z
UID:8949-1789135200-1789138800@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-16/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260910T160000
DTEND;TZID=Europe/Rome:20260910T170000
DTSTAMP:20260806T101110Z
CREATED:20260806T100357Z
LAST-MODIFIED:20260806T101110Z
UID:9699-1789056000-1789059600@ernbond.eu
SUMMARY:Hypophosphatemia: Clinical consequences and diagnostic approach
DESCRIPTION:
URL:https://ernbond.eu/event/hypophosphatemia-clinical-consequences-and-diagnostic-approach/
ATTACH;FMTTYPE=image/png:https://ernbond.eu/wp-content/uploads/2026/08/WebinarSeries_Minisola.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260908T180000
DTEND;TZID=Europe/Rome:20260908T190000
DTSTAMP:20260806T120938Z
CREATED:20260806T120906Z
LAST-MODIFIED:20260806T120938Z
UID:9723-1788890400-1788894000@ernbond.eu
SUMMARY:ERN BOND Internal ePAG meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-internal-epag-workshop-6/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260908T170000
DTEND;TZID=Europe/Rome:20260908T180000
DTSTAMP:20260122T150527Z
CREATED:20260122T150337Z
LAST-MODIFIED:20260122T150527Z
UID:8891-1788886800-1788890400@ernbond.eu
SUMMARY:ERN BOND bimonthly WP4 meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-bimonthly-wp4-meeting-4/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260826T100000
DTEND;TZID=Europe/Rome:20260826T110000
DTSTAMP:20260122T161301Z
CREATED:20260122T161147Z
LAST-MODIFIED:20260122T161301Z
UID:8947-1787738400-1787742000@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-15/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260825T180000
DTEND;TZID=Europe/Rome:20260825T190000
DTSTAMP:20260804T172646Z
CREATED:20260804T172646Z
LAST-MODIFIED:20260804T172646Z
UID:9692-1787680800-1787684400@ernbond.eu
SUMMARY:Internal ePAG workshop
DESCRIPTION:
URL:https://ernbond.eu/event/internal-epag-workshop/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260821T140000
DTEND;TZID=Europe/Rome:20260821T150000
DTSTAMP:20260803T093809Z
CREATED:20260122T161115Z
LAST-MODIFIED:20260803T093809Z
UID:8945-1787320800-1787324400@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-14/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260820T153000
DTEND;TZID=Europe/Rome:20260820T163000
DTSTAMP:20260226T170200Z
CREATED:20260226T170200Z
LAST-MODIFIED:20260226T170200Z
UID:9183-1787239800-1787243400@ernbond.eu
SUMMARY:WP7 meeting
DESCRIPTION:
URL:https://ernbond.eu/event/wp7-meeting-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260811T180000
DTEND;TZID=Europe/Rome:20260811T190000
DTSTAMP:20260803T093953Z
CREATED:20260803T093953Z
LAST-MODIFIED:20260803T093953Z
UID:9689-1786471200-1786474800@ernbond.eu
SUMMARY:ERN BOND Internal ePAG meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-internal-epag-meeting-7/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260728T180000
DTEND;TZID=Europe/Rome:20260728T190000
DTSTAMP:20260706T124018Z
CREATED:20260706T123829Z
LAST-MODIFIED:20260706T124018Z
UID:9639-1785261600-1785265200@ernbond.eu
SUMMARY:ERN BOND Internal ePAG workshop
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-internal-epag-workshop-5/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260722T170000
DTEND;TZID=Europe/Rome:20260722T180000
DTSTAMP:20260706T124235Z
CREATED:20260706T124209Z
LAST-MODIFIED:20260706T124235Z
UID:9641-1784739600-1784743200@ernbond.eu
SUMMARY:ERN BOND webinar series...Talking about
DESCRIPTION:Title: Clinical perspectives on Achondroplasia: Management from birth to adolescence\nDate: 22 July 2026 17:\n\nSpeaker: \n\nMaria Francesca Bedeschi\, MD:  Head of the Neonatal-Onset Clinical Genetics Center at Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico\, Milan\, Italy\n\nMichaela Veronika Gonfiantini\, MD: Consultant in paediatrics of the Rare Diseases and Medical Genetics Unit\, Bambino Gesù Children’s Hospital IRCCS\, Rome\, Italy\nRoberta Onesimo\, MD\, PhD: Head of Pediatric Unit at Fondazione Policlinico A Gemelli – IRCCS Rome ITALY – Catholic University of the Sacred Heart Rome ITALY
URL:https://ernbond.eu/event/ern-bond-webinar-series-talking-about/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260722T100000
DTEND;TZID=Europe/Rome:20260722T110000
DTSTAMP:20260122T160956Z
CREATED:20260122T160956Z
LAST-MODIFIED:20260122T160956Z
UID:8943-1784714400-1784718000@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-13/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260721T170000
DTEND;TZID=Europe/Rome:20260721T180000
DTSTAMP:20260706T101659Z
CREATED:20260122T143329Z
LAST-MODIFIED:20260706T101659Z
UID:8876-1784653200-1784656800@ernbond.eu
SUMMARY:ERN BOND monthly CPMS sessions
DESCRIPTION:ERNBOND July CPMS session calendar invitation
URL:https://ernbond.eu/event/ern-bond-monthly-cpms-sessions-6/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260721T160000
DTEND;TZID=Europe/Rome:20260721T170000
DTSTAMP:20260122T150200Z
CREATED:20260122T150200Z
LAST-MODIFIED:20260122T150200Z
UID:8889-1784649600-1784653200@ernbond.eu
SUMMARY:ERN BOND WP2 meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-wp2-meeting-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260715T173000
DTEND;TZID=Europe/Rome:20260715T183000
DTSTAMP:20260122T143246Z
CREATED:20260122T143246Z
LAST-MODIFIED:20260122T143246Z
UID:8874-1784136600-1784140200@ernbond.eu
SUMMARY:ERN BOND WP8 meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-wp8-meeting-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260714T180000
DTEND;TZID=Europe/Rome:20260714T190000
DTSTAMP:20260706T141335Z
CREATED:20260706T123752Z
LAST-MODIFIED:20260706T141335Z
UID:9637-1784052000-1784055600@ernbond.eu
SUMMARY:ERN BOND Internal ePAG meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-internal-epag-meeting-6/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260714T170000
DTEND;TZID=Europe/Rome:20260714T180000
DTSTAMP:20260122T143039Z
CREATED:20260122T143039Z
LAST-MODIFIED:20260122T143039Z
UID:8872-1784048400-1784052000@ernbond.eu
SUMMARY:ERN BOND bimonthly WP4 meeting
DESCRIPTION:to be confirmed
URL:https://ernbond.eu/event/ern-bond-bimonthly-wp4-meeting-3/
END:VEVENT
END:VCALENDAR