BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//ERN BOND - ECPv6.17.2//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:ERN BOND
X-ORIGINAL-URL:https://ernbond.eu
X-WR-CALDESC:Events for ERN BOND
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:Europe/Rome
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20250330T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20251026T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20260329T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20261025T010000
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BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20270328T010000
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BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20271031T010000
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END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260821T140000
DTEND;TZID=Europe/Rome:20260821T150000
DTSTAMP:20260803T093809Z
CREATED:20260122T161115Z
LAST-MODIFIED:20260803T093809Z
UID:8945-1787320800-1787324400@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-14/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260820T153000
DTEND;TZID=Europe/Rome:20260820T163000
DTSTAMP:20260226T170200Z
CREATED:20260226T170200Z
LAST-MODIFIED:20260226T170200Z
UID:9183-1787239800-1787243400@ernbond.eu
SUMMARY:WP7 meeting
DESCRIPTION:
URL:https://ernbond.eu/event/wp7-meeting-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260811T180000
DTEND;TZID=Europe/Rome:20260811T190000
DTSTAMP:20260803T093953Z
CREATED:20260803T093953Z
LAST-MODIFIED:20260803T093953Z
UID:9689-1786471200-1786474800@ernbond.eu
SUMMARY:ERN BOND Internal ePAG meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-internal-epag-meeting-7/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260728T180000
DTEND;TZID=Europe/Rome:20260728T190000
DTSTAMP:20260706T124018Z
CREATED:20260706T123829Z
LAST-MODIFIED:20260706T124018Z
UID:9639-1785261600-1785265200@ernbond.eu
SUMMARY:ERN BOND Internal ePAG workshop
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-internal-epag-workshop-5/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260722T170000
DTEND;TZID=Europe/Rome:20260722T180000
DTSTAMP:20260706T124235Z
CREATED:20260706T124209Z
LAST-MODIFIED:20260706T124235Z
UID:9641-1784739600-1784743200@ernbond.eu
SUMMARY:ERN BOND webinar series...Talking about
DESCRIPTION:Title: Clinical perspectives on Achondroplasia: Management from birth to adolescence\nDate: 22 July 2026 17:\n\nSpeaker: \n\nMaria Francesca Bedeschi\, MD:  Head of the Neonatal-Onset Clinical Genetics Center at Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico\, Milan\, Italy\n\nMichaela Veronika Gonfiantini\, MD: Consultant in paediatrics of the Rare Diseases and Medical Genetics Unit\, Bambino Gesù Children’s Hospital IRCCS\, Rome\, Italy\nRoberta Onesimo\, MD\, PhD: Head of Pediatric Unit at Fondazione Policlinico A Gemelli – IRCCS Rome ITALY – Catholic University of the Sacred Heart Rome ITALY
URL:https://ernbond.eu/event/ern-bond-webinar-series-talking-about/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260722T100000
DTEND;TZID=Europe/Rome:20260722T110000
DTSTAMP:20260122T160956Z
CREATED:20260122T160956Z
LAST-MODIFIED:20260122T160956Z
UID:8943-1784714400-1784718000@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-13/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260721T170000
DTEND;TZID=Europe/Rome:20260721T180000
DTSTAMP:20260706T101659Z
CREATED:20260122T143329Z
LAST-MODIFIED:20260706T101659Z
UID:8876-1784653200-1784656800@ernbond.eu
SUMMARY:ERN BOND monthly CPMS sessions
DESCRIPTION:ERNBOND July CPMS session calendar invitation
URL:https://ernbond.eu/event/ern-bond-monthly-cpms-sessions-6/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260721T160000
DTEND;TZID=Europe/Rome:20260721T170000
DTSTAMP:20260122T150200Z
CREATED:20260122T150200Z
LAST-MODIFIED:20260122T150200Z
UID:8889-1784649600-1784653200@ernbond.eu
SUMMARY:ERN BOND WP2 meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-wp2-meeting-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260715T173000
DTEND;TZID=Europe/Rome:20260715T183000
DTSTAMP:20260122T143246Z
CREATED:20260122T143246Z
LAST-MODIFIED:20260122T143246Z
UID:8874-1784136600-1784140200@ernbond.eu
SUMMARY:ERN BOND WP8 meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-wp8-meeting-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260714T180000
DTEND;TZID=Europe/Rome:20260714T190000
DTSTAMP:20260706T141335Z
CREATED:20260706T123752Z
LAST-MODIFIED:20260706T141335Z
UID:9637-1784052000-1784055600@ernbond.eu
SUMMARY:ERN BOND Internal ePAG meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-internal-epag-meeting-6/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260714T170000
DTEND;TZID=Europe/Rome:20260714T180000
DTSTAMP:20260122T143039Z
CREATED:20260122T143039Z
LAST-MODIFIED:20260122T143039Z
UID:8872-1784048400-1784052000@ernbond.eu
SUMMARY:ERN BOND bimonthly WP4 meeting
DESCRIPTION:to be confirmed
URL:https://ernbond.eu/event/ern-bond-bimonthly-wp4-meeting-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260710T140000
DTEND;TZID=Europe/Rome:20260710T150000
DTSTAMP:20260122T160915Z
CREATED:20260122T160915Z
LAST-MODIFIED:20260122T160915Z
UID:8940-1783692000-1783695600@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-12/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260630T180000
DTEND;TZID=Europe/Rome:20260630T190000
DTSTAMP:20260610T100517Z
CREATED:20260610T100517Z
LAST-MODIFIED:20260610T100517Z
UID:9552-1782842400-1782846000@ernbond.eu
SUMMARY:ERN BOND Internal ePAG workshop
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-internal-epag-workshop-4/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260624T100000
DTEND;TZID=Europe/Rome:20260624T110000
DTSTAMP:20260122T160738Z
CREATED:20260122T160738Z
LAST-MODIFIED:20260122T160738Z
UID:8938-1782295200-1782298800@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-11/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260624T084500
DTEND;TZID=Europe/Rome:20260624T184500
DTSTAMP:20260623T132105Z
CREATED:20260623T130833Z
LAST-MODIFIED:20260623T132105Z
UID:9604-1782290700-1782326700@ernbond.eu
SUMMARY:ERN BOND – ePAGs Workshop: Diagnosis and multidisciplinary management in skeletal dysplasias · 2nd Edition
DESCRIPTION:Event Summary\n\n\n\nEvent\nDiagnosis and multidisciplinary management in skeletal dysplasias · 2nd Edition\n\n\nDate\n24 – 25 June 2026\n\n\nLocation\nCraiova\, Romania\n\n\nOrganisation\nUniversity of Medicine and Pharmacy of Craiova\n\n\nDownload\nPreliminary Programme\n\n\n\n 
URL:https://ernbond.eu/event/ern-bond-epags-workshop-diagnosis-and-multidisciplinary-management-in-skeletal-dysplasias-%c2%b7-2nd-edition/
LOCATION:Hotel Ramada Craiova\, Amza Pelea Room\, Craiova\, Romania
ATTACH;FMTTYPE=image/png:https://ernbond.eu/wp-content/uploads/2026/06/Craiova-course-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260623T180000
DTEND;TZID=Europe/Rome:20260623T190000
DTSTAMP:20260610T100443Z
CREATED:20260304T154336Z
LAST-MODIFIED:20260610T100443Z
UID:9226-1782237600-1782241200@ernbond.eu
SUMMARY:ERN BOND ePAG & Coordination meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-internal-epag-workshop-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260612T140000
DTEND;TZID=Europe/Rome:20260612T150000
DTSTAMP:20260122T154523Z
CREATED:20260122T154523Z
LAST-MODIFIED:20260122T154523Z
UID:8935-1781272800-1781276400@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-10/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260611T160000
DTEND;TZID=Europe/Rome:20260611T170000
DTSTAMP:20260610T162034Z
CREATED:20260610T162034Z
LAST-MODIFIED:20260610T162034Z
UID:9555-1781193600-1781197200@ernbond.eu
SUMMARY:ERN BOND Webinar: Understanding Hypophosphatasia
DESCRIPTION:Join us on 11 June at 16:00 CEST for an insightful session led by Prof. Wolfgang Högler\, Chair and Chief of Paediatrics at the Johannes Kepler University Linz (Austria).
URL:https://ernbond.eu/event/ern-bond-webinar-understanding-hypophosphatasia/
ATTACH;FMTTYPE=image/png:https://ernbond.eu/wp-content/uploads/2026/06/Grafica-webinar-scelta.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260611T150000
DTEND;TZID=Europe/Rome:20260611T160000
DTSTAMP:20260424T112516Z
CREATED:20260424T112516Z
LAST-MODIFIED:20260424T112516Z
UID:9433-1781190000-1781193600@ernbond.eu
SUMMARY:CPMS 2.0: Trainings for local helpdesks and admins\, addressing admin & reporting tasks
DESCRIPTION:
URL:https://ernbond.eu/event/cpms-2-0-trainings-for-local-helpdesks-and-admins-addressing-admin-reporting-tasks-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260610T170000
DTEND;TZID=Europe/Rome:20260610T180000
DTSTAMP:20260122T145410Z
CREATED:20260122T145410Z
LAST-MODIFIED:20260122T145410Z
UID:8885-1781110800-1781114400@ernbond.eu
SUMMARY:ERN BOND WP6 meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-wp6-meeting-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260609T180000
DTEND;TZID=Europe/Rome:20260609T190000
DTSTAMP:20260304T154246Z
CREATED:20260304T153849Z
LAST-MODIFIED:20260304T154246Z
UID:9224-1781028000-1781031600@ernbond.eu
SUMMARY:ERN BOND Internal ePAG meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-internal-epag-meeting-5/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260609T170000
DTEND;TZID=Europe/Rome:20260609T180000
DTSTAMP:20260122T145231Z
CREATED:20260122T145231Z
LAST-MODIFIED:20260122T145231Z
UID:8883-1781024400-1781028000@ernbond.eu
SUMMARY:ERN BOND monthly CPMS sessions
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-monthly-cpms-sessions-8/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260609T090000
DTEND;TZID=Europe/Rome:20260609T100000
DTSTAMP:20260424T112540Z
CREATED:20260227T155526Z
LAST-MODIFIED:20260424T112540Z
UID:9194-1780995600-1780999200@ernbond.eu
SUMMARY:CPMS 2.0: Trainings for clinicians\, addressing Web & Mobile interfaces:
DESCRIPTION:
URL:https://ernbond.eu/event/cpms-2-0-trainings-for-clinicians-addressing-web-mobile-interfaces-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260528T110000
DTEND;TZID=Europe/Rome:20260528T120000
DTSTAMP:20260506T154206Z
CREATED:20260226T170011Z
LAST-MODIFIED:20260506T154206Z
UID:9181-1779966000-1779969600@ernbond.eu
SUMMARY:WP7 meeting
DESCRIPTION:
URL:https://ernbond.eu/event/wp7-meeting-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260528
DTEND;VALUE=DATE:20260530
DTSTAMP:20260122T154047Z
CREATED:20260122T121638Z
LAST-MODIFIED:20260122T154047Z
UID:8834-1779926400-1780099199@ernbond.eu
SUMMARY:11th ERN BOND Plenary meeting
DESCRIPTION:
URL:https://ernbond.eu/event/11th-ern-bond-plenary-meeting/
LOCATION:Quality Hotel Expo\, Fornebu\, Norway
ATTACH;FMTTYPE=image/png:https://ernbond.eu/wp-content/uploads/2025/11/ERN_BOND_PUBLICATION-OSLO_NORWAY.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260527T100000
DTEND;TZID=Europe/Rome:20260527T110000
DTSTAMP:20260122T154424Z
CREATED:20260122T154424Z
LAST-MODIFIED:20260122T154424Z
UID:8933-1779876000-1779879600@ernbond.eu
SUMMARY:Registries Drop-In Session
DESCRIPTION:
URL:https://ernbond.eu/event/registries-drop-in-session-9/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260526T180000
DTEND;TZID=Europe/Rome:20260526T190000
DTSTAMP:20260304T153652Z
CREATED:20260304T153652Z
LAST-MODIFIED:20260304T153652Z
UID:9222-1779818400-1779822000@ernbond.eu
SUMMARY:ERN BOND Internal ePAG workshop
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-internal-epag-workshop-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260519T170000
DTEND;TZID=Europe/Rome:20260519T180000
DTSTAMP:20260424T124225Z
CREATED:20260122T142443Z
LAST-MODIFIED:20260424T124225Z
UID:8870-1779210000-1779213600@ernbond.eu
SUMMARY:Joint Endo-ERN-ERN BOND CPMS session
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-monthly-cpms-sessions-5/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260513T140000
DTEND;TZID=Europe/Rome:20260513T170000
DTSTAMP:20260122T142823Z
CREATED:20260122T142214Z
LAST-MODIFIED:20260122T142823Z
UID:8867-1778680800-1778691600@ernbond.eu
SUMMARY:Monitoring the contributions of individual HCPs to the ERN best practice webinar
DESCRIPTION:
URL:https://ernbond.eu/event/monitoring-the-contributions-of-individual-hcps-to-the-ern-best-practice-webinar/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260512T180000
DTEND;TZID=Europe/Rome:20260512T190000
DTSTAMP:20260304T153618Z
CREATED:20260304T153618Z
LAST-MODIFIED:20260304T153618Z
UID:9220-1778608800-1778612400@ernbond.eu
SUMMARY:ERN BOND Internal ePAG meeting
DESCRIPTION:
URL:https://ernbond.eu/event/ern-bond-internal-epag-meeting-4/
END:VEVENT
END:VCALENDAR